"A Person Taking Care of the Sick is also a Sick Person": Challenges and Consequences of Hospital-Based Informal Caregiving.

Journal: Inquiry : a journal of medical care organization, provision and financing

Volume: 61

Issue: 

Year of Publication: 2024

Affiliated Institutions:  Institute of African Studies, University of Ibadan, Nigeria. International Network for Advancing Science and Policy (INASP), UK. Institute of Child Health, College of Medicine, University of Ibadan, Nigeria. School of Public Health, University of the Western Cape, South Africa. Department of Sociology, University of Ibadan, Nigeria.

Abstract summary 

Informal caregivers support relatives in healthcare facilities globally. However, their involvement in hospitalization care while residing in and around the hospital is more prevalent in under-resourced settings. This article examined the challenges and multifaceted consequences of hospital-based informal caregiving in a Nigerian tertiary health facility. The study adopted a non-experimental exploratory research design and ethnographic and qualitative techniques were used to collect data from 75 participants, comprising 21 informal caregivers, 15 inpatients, 36 hospital staff, and 3 ad-hoc/paid caregivers. The challenges identified include: physical health effects and infection risks; livelihood and economic impact; mental health effects; inadequate access to basic services; exposure to safety risks and violence; conflict and barriers within the health system; and social impact. These challenges have negative consequences on informal caregivers, including heightening their vulnerability to poor health and burdening them economically and socially. Informal caregivers play a crucial role in under-resourced settings. Policymakers should create a supportive healthcare environment that meets their needs, ultimately improving the overall quality of care provided in tertiary health facilities.

Authors & Co-authors:  Adebayo Kudus Oluwatoyin KO Somefun Oluwaseyi Dolapo OD Omobowale Mofeyisara M Casale Marisa M Usman Rukayat R Olujimi Atinuke A Omodara Funmilayo F

Study Outcome 

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Statistics
Citations :  Zarzycki M, Seddon D, Bei E, Dekel R, Morrison V. How culture shapes informal caregiver motivations: a meta-ethnographic review. Qual Health Res. 2022;32(10):1574-1589.
Authors :  7
Identifiers
Doi : 00469580241302005
SSN : 1945-7243
Study Population
Male,Female
Mesh Terms
Humans
Other Terms
health systems;hospital-based caregiving;hospitalization;informal caregivers;lived experiences
Study Design
Exploratory Study,Ethnographic Study
Study Approach
Qualitative
Country of Study
Niger
Publication Country
United States