Reducing stigma and improving access to care for people with mental health conditions in the community: protocol for a multi-site feasibility intervention study (Indigo-Local).

Journal: International journal of mental health systems

Volume: 18

Issue: 1

Year of Publication: 

Affiliated Institutions:  Centre for Global Health Research, Brighton and Sussex Medical School, Brighton, UK. m.semrau@bsms.ac.uk. Centre for Global Mental Health, Health Service and Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK. Centre for Global Mental Health, London School of Hygiene and Tropical Medicine, London, UK. George Institute for Global Health, New Delhi, India. Department of Preventive Medicine, School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia. Centre for Implementation Science, Health Service and Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK. Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Bengaluru, India. Transcultural Psychosocial Organization (TPO) Nepal, Pokhara, Nepal. Health Service and Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK. The Affiliated Brain Hospital of Guangzhou Medical University, Guangzhou, China. National Institute of Mental Health and Neurosciences, Bengaluru, India. Peking University Sixth Hospital, Peking University Institute of Mental Health, Beijing, China. Department of Psychiatry A, Razi University Hospital, Manouba, Tunisia. Nuffield Department of Women's & Reproductive Health, University of Oxford, Oxford, UK. nicole.votruba@wrh.ox.ac.uk.

Abstract summary 

Stigma and discrimination towards people with mental health conditions by their communities are common worldwide. This can result in a range of negative outcomes for affected persons, including poor access to health care. However, evidence is still patchy from low- and middle-income countries (LMICs) on affordable, community-based interventions to reduce mental health-related stigma and to improve access to mental health care.This study aims to conduct a feasibility (proof-of-principle) pilot study that involves developing, implementing and evaluating a community-based, multi-component, awareness-raising intervention (titled Indigo-Local), designed to reduce stigma and discrimination and to increase referrals of people with mental health conditions for assessment and treatment. It is being piloted in seven sites in five LMICs-China, Ethiopia, India, Nepal and Tunisia-and includes several key components: a stakeholder group workshop; a stepped training programme (using a 'Training of Trainers' approach) of community health workers (or similar cadres of workers) and service users that includes repeated supervision and booster sessions; community engagement activities; and a media campaign. Social contact and service user involvement are instrumental to all components. The intervention is being evaluated through a mixed-methods pre-post study design that involves quantitative assessment of stigma outcomes measuring knowledge, attitudes and (discriminatory) behaviour; quantitative evaluation of mental health service utilization rates (optional, where feasible in sites); qualitative exploration of the potential effectiveness and impact of the Indigo-Local intervention; a process evaluation; implementation evaluation; and an evaluation of implementation costs.The output of this study will be a contextually adapted, evidence-based intervention to reduce mental health-related stigma in local communities in five LMICs to achieve improved access to healthcare. We will have replicable models of how to involve people with lived experience as an integral part of the intervention and will produce knowledge of how intervention content and implementation strategies vary across settings. The intervention and its delivery will be refined to be feasible and ready for larger-scale implementation and evaluation. This study thereby has the potential to make an important contribution to the evidence base on what works to reduce mental health-related stigma and discrimination and improve access to health care.

Authors & Co-authors:  Semrau Maya M Gronholm Petra C PC Eaton Julian J Maulik Pallab K PK Ayele Bethel B Bakolis Ioannis I Mendon Gurucharan Bhaskar GB Bhattarai Kalpana K Brohan Elaine E Cherian Anish V AV Daniel Mercian M Girma Eshetu E Gurung Dristy D Hailemariam Ariam A Hanlon Charlotte C Healey Andy A Kallakuri Sudha S Li Jie J Loganathan Santosh S Ma Ning N Ma Yurong Y Metsahel Amani A Ouali Uta U Yaziji Nahel N Zgueb Yosra Y Zhang Wufang W Zhang Xiaotong X Thornicroft Graham G Votruba Nicole N

Study Outcome 

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Statistics
Citations :  Pescosolido B, Medina T, Martin J, Long JS. The “backbone” of stigma: identifying the global core of public prejudice associated with mental illness. Am J Public Health. 2013;103(5):853–60.
Authors :  29
Identifiers
Doi : 35
SSN : 1752-4458
Study Population
Male,Female
Mesh Terms
Other Terms
Access to care;Community awareness;Low- and middle-income countries;Mental health;Protocol;Stigma
Study Design
Study Approach
Quantitative,Qualitative
Country of Study
Tunisia
Publication Country
England