From Struggle to Strength: A Multicentric Study on How Public Policies for Celiac Disease Transform Lives.

Journal: Nutrients

Volume: 16

Issue: 17

Year of Publication: 2024

Affiliated Institutions:  Department of Nutrition, School of Health Sciences, University of Brasilia, Brasilia -, Brazil. College of Population Health, University of New Mexico, Albuquerque, NM , USA. Department of Statistics, University of Brasilia, Brasilia -, Brazil. ESSV, Centre for Studies in Education and Innovation (CI&DEI), Polytechnic University of Viseu, - Viseu, Portugal. Celiac Disease and Gluten Related Disorders Research Center, Research Institute for Gastroenterology and Liver Diseases, Shahid Beheshti University of Medical Sciences, Tehran , Iran. Science and Technology Team, Higher School of Education and Training, Chouaib Doukkali University of El Jadida, El Jadida , Morocco. Institute of Nutritional Science, Justus-Liebig University, Giessen, Germany. Service de Médecine Interne, Hôpital Européen Georges Pompidou, Assistance Publique-Hôpitaux de Paris, Université Paris Cité, Paris, France. Medizinisches Versorgungszentrum für Schmerzmedizin und Seelische Gesundheit Saarbrücken-St. Johann Health Care Center Pain Medicine and Mental Health Saarbrücken, St. Johann Großherzog-Friedrich-Straße , Saarbrücken, Germany.

Abstract summary 

This multicenter study aims to assess the impact of public policies (PPs) on the health-related quality of life (HRQoL) of individuals with celiac disease (CD) using the Celiac Disease Questionnaire (CDQ) and PPs for Celiac Disease Score (PPCDS). This cross-sectional exploratory study was conducted in four stages: first, standardizing data from countries using the CDQ; second, analyzing PPs aimed at CD patients; third, statistically examining these data; and fourth, associating HRQoL indicators with corresponding PPs. This study analyzed 15 CDQ assessments from 12 countries from 2007 to 2023. It found that comprehensive PPs positively correlated with HRQoL outcomes (Spearman correlation of 0.358). However, policies specifically targeting gluten-free meals and certification did not significantly improve HRQoL individually, suggesting they may be more effective when implemented together. Additionally, specialized health services did not notably reduce gastrointestinal symptoms, underscoring the necessity for improved patient education to enhance the effectiveness of these services. This study concludes that implementing and rigorously monitoring regulations to support CD patients is crucial for enhancing their HRQoL.

Authors & Co-authors:  Falcomer Ana Luísa AL Pratesi Claudia B CB Nakano Eduardo Yoshio EY Chaves Cláudia C Rostami-Nejad Mohammad M Guennouni Morad M Aksan Ayşegül A Pouchot Jacques J Häuser Winfried W Zandonadi Renata Puppin RP

Study Outcome 

Source Link: Visit source

Statistics
Citations :  Dimidi E., Kabir B., Singh J., Ageridou A., Foster C., Ciclitira P., Dubois P., Whelan K. Predictors of adherence to a gluten-free diet in celiac disease: Do knowledge, attitudes, experiences, symptoms, and quality of life play a role? Nutrition. 2021;90:111249. doi: 10.1016/j.nut.2021.111249.
Authors :  10
Identifiers
Doi : 2855
SSN : 2072-6643
Study Population
Male,Female
Mesh Terms
Celiac Disease
Other Terms
celiac disease public policies;celiac disease questionnaire;gluten-free;regulations
Study Design
Cross Sectional Study,Exploratory Study
Study Approach
Country of Study
Publication Country
Switzerland