Living with peripartum cardiomyopathy: A statement from the Heart Failure Association and the Association of Cardiovascular Nursing and Allied Professions of the European Society of Cardiology.

Journal: European journal of heart failure

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Affiliated Institutions:  Cape Heart Institute, Department of Cardiology and Medicine, University of Cape Town, Cape Town, South Africa. Scientific Institution of Cardiology and Internal Medicine Almaty, Almaty, Kazakhstan. Department of Cardiology and Angiology, Hannover Medical School, Hannover, Germany. Golden Jubilee National Hospital, Clydebank, UK. Department of Cardiology, Institute of Cardiovascular and Medical Sciences, Glasgow University, Glasgow, UK. Department of Cardiology, University Medical Center Groningen, Groningen, The Netherlands. Iraqi Board for Medical Specialization, Scientific Council of Cardiology, College of Medicine, University of Baghdad, Baghdad Heart Centre, Iraq. Department of Cardiology, University Clinic of Cardiology, University Cyril and Methodius, Skopje, North Macedonia. Department of Medicine, College of Medicine, University of Lagos, Lagos, Nigeria. Cardiovascular Department, Azienda Sanitaria Universitaria Giuliano Isontina (ASUGI), University of Trieste, Trieste, Italy. Department of Cardiology, Antwerp University Hospital (UZA), Edegem, Belgium. National Heart and Lung Institute, Imperial College London and Royal Brompton Hospital, London, UK. Richard Midham, European Cardiac Society Patient Forum, Sophia Antipolis, France. Emergency Institute for Cardiovascular Diseases 'C.C. Iliescu', and University of Medicine 'Carol Davila', Bucharest, Romania. Department of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany. Cardiovascular Clinical Academic Group, Molecular and Clinical Research Institute, St George's University Hospital, UK and San Raffaele Cassino Hospital, Cassino, Italy. Department of Cardiology (CVK), Berlin-Brandenburg Center for Regenerative Therapies (BCRT), German Centre for Cardiovascular Research (DZHK) Partner Site Berlin, Charité University, Berlin, Germany. University Paris Cite, Department of Anaesthesiology and Critical Care Medicine, AP-HP, Saint Louis Lariboisière University Hospitals, University Paris Diderot, Paris, France. University of Belgrade Faculty of Medicine and Heart Failure Center, Belgrade University Medical Center, Belgrade, Serbia.

Abstract summary 

This statement focuses on the fact that women with peripartum cardiomyopathy (PPCM) have a substantial mortality and morbidity rate. Less than 50% of patients have full recovery of their cardiac function within 6 months of diagnosis. Also, patients with recovered cardiac function often suffer from comorbidities, such as hypertension or arrhythmias, which require long-term treatment. This has major implications which extend beyond the life of the patient, as it may also substantially impact her family. Women with a new diagnosis of PPCM should be involved in the decision-making processes regarding therapies, e.g. the recommendation to abstain from breastfeeding, or the use of cardiac implantable electronic devices. Women living with PPCM face the uncertainty of not knowing for some time whether their cardiac function will recover to allow them a near-to-normal life expectancy. This not only impacts their ability to work, which may have financial implications, but may also affect mental health and quality of life for the extended family. Women living with PPCM must be informed that a future pregnancy always carries a substantial risk and, in case of poor cardiac recovery, is associated with a high morbidity and mortality. Patients with PPCM are best managed by an interdisciplinary and multiprofessional approach including e.g. a cardiologist, a gynaecologist, nurses, a psychologist, and social workers. The scope of this document encompasses contemporary challenges and approaches for the management of women diagnosed with PPCM.

Authors & Co-authors:  Sliwa Karen K Rakisheva Amina A Viljoen Charle C Pfeffer Tobias T Simpson Maggie M Jackson Alice M AM Petrie Mark C MC van der Meer Peter P Al Farhan Hasan H Jovanova Silvana S Mbakwem Amam A Sinagra Gianfranco G Van Craenenbroeck Emeline E Hoevelmann Julian J Johnson Mark R MR Mindham Richard R Chioncel Ovidiu O Kahl Kai G KG Rosano Giuseppe G Tschöpe Carsten C Mebazaa Alexandre A Seferovic Petar P Bauersachs Johann J

Study Outcome 

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Statistics
Citations :  Bauersachs J, Konig T, van der Meer P, Petrie MC, Hilfiker‐Kleiner D, Mbakwem A, et al. Pathophysiology, diagnosis and management of peripartum cardiomyopathy: A position statement from the Heart Failure Association of the European Society of Cardiology Study Group on peripartum cardiomyopathy. Eur J Heart Fail 2019;21:827–843. https://doi.org/10.1002/ejhf.1493
Authors :  23
Identifiers
Doi : 10.1002/ejhf.3377
SSN : 1879-0844
Study Population
Female,Women
Mesh Terms
Other Terms
Multidisciplinary care;Patient awareness;Peripartum cardiomyopathy;Therapy
Study Design
Case Study
Study Approach
Country of Study
Publication Country
England