The lived experience of mental disorders in adolescents: a bottom-up review co-designed, co-conducted and co-written by experts by experience and academics.
Journal: World psychiatry : official journal of the World Psychiatric Association (WPA)
Volume: 23
Issue: 2
Year of Publication:
Affiliated Institutions:
Early Psychosis: Interventions and Clinical-detection (EPIC) Lab, Department of Psychosis Studies, King's College London, London, UK.
Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
S. Kierkegaard Research Centre, University of Copenhagen, Copenhagen, Denmark.
Department of Psychological Sciences, Health and Territory, G. D'Annunzio University of Chieti and Pescara, Chieti, Italy.
Department of Health Sciences, University of Florence, Florence, Italy.
Young Person's Mental Health Advisory Group, King's College London, London, UK.
OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK.
Global Mental Health Peer Network, Delhi, India.
Global Mental Health Peer Network, Nairobi, Kenya.
Global Mental Health Peer Network, Lusaka, Zambia.
Lusaka Apex Medical University, Lusaka, Zambia.
Global Mental Health Peer Network, Bulawayo, Zimbabwe.
National Neurological Institute, IRCCS C. Mondino Foundation, Pavia, Italy.
South London and Maudsley NHS Foundation Trust, London, UK.
Institut d'Investigacions Biomediques August Pi i Sunyer, CIBERSAM, Instituto de Salud Carlos III, University of Barcelona, Barcelona, Spain.
Department of Clinical, Educational and Health Psychology, University College London, London, UK.
Department of Pediatrics, Yonsei University College of Medicine, Seoul, Republic of Korea.
Centre for Innovation in Mental Health, School of Psychology, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.
Social, Genetic and Developmental Psychiatry Centre and Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
Orygen, Melbourne, VIC, Australia.
Institute of Psychiatry and Mental Health, Department of Child and Adolescent Psychiatry, Hospital General Universitario G. Marañón, School of Medicine, Universidad Complutense, CIBERSAM, Madrid, Spain.
Department of Child and Adolescent Psychiatry, Universitätsmedizin Berlin, Berlin, Germany.
Department of Psychiatry, University of Campania "Luigi Vanvitelli", Naples, Italy.
Abstract summary
We provide here the first bottom-up review of the lived experience of mental disorders in adolescents co-designed, co-conducted and co-written by experts by experience and academics. We screened first-person accounts within and outside the medical field, and discussed them in collaborative workshops involving numerous experts by experience - representing different genders, ethnic and cultural backgrounds, and continents - and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention-deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self-harm behaviors. The recollection of individuals' past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co-designed, co-conducted and co-written journey can help us maintain our commitment to protecting adolescents' fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.
Authors & Co-authors:
Fusar-Poli Paolo P
Estradé Andrés A
Esposito Cecilia M CM
Rosfort René R
Basadonne Ilaria I
Mancini Milena M
Stanghellini Giovanni G
Otaiku Jummy J
Olanrele Oluwadamilola O
Allen Lucas L
Lamba Muskan M
Alaso Catherine C
Ieri Judy J
Atieno Margret M
Oluoch Yvonne Y
Ireri Phides P
Tembo Ephraim E
Phiri Innocent Z IZ
Nkhoma Duncan D
Sichone Noah N
Siadibbi Candy C
Sundi Pharidah R I O PRIO
Ntokozo Nyathi N
Fusar-Poli Laura L
Floris Valentina V
Mensi Martina M MM
Borgatti Renato R
Damiani Stefano S
Provenzani Umberto U
Brondino Natascia N
Bonoldi Ilaria I
Radua Joaquim J
Cooper Kate K
Shin Jae Il JI
Cortese Samuele S
Danese Andrea A
Bendall Sarah S
Arango Celso C
Correll Christoph U CU
Maj Mario M
Study Outcome
Source Link: Visit source