An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders.

Journal: Journal of clinical medicine

Volume: 13

Issue: 7

Year of Publication: 

Affiliated Institutions:  National Drug and Alcohol Research Centre, UNSW, Sydney , Australia. International Consortium for Health Outcomes Measurement, London W EU, UK. Department of Family Medicine, Faculty of Medicine, Chiang Mai University, Chiang Mai , Thailand. Department of Epidemiology, Faculty of Medicine, Prince of Songkla University, Songkhla , Thailand. School of Psychology, Brain and Mind Centre, Faculty of Science, University of Sydney, Sydney , Australia. Department of Psychiatry, University College London, London NW AE, UK. Amsterdam University Medical Centers, Department of Psychiatry, University of Amsterdam, AZ Amsterdam, The Netherlands. Northwick Park Hospital, Central and North West London Trust, London HA UJ, UK. School of Social Work, Rutgers, The State University of New Jersey, New Brunswick, NJ , USA. Department of Epidemiology, College of Medicine & Public Health and Health Professions, University of Florida, Homestead, FL , USA. Independent Researcher, South Berwick, ME , USA. Department of Psychology, Faculty of Community and Health, European Monitoring Centre for Drugs and Drug Addiction, - Lisbon, Portugal. Department of Biostatistics, School of Public Health, University of the Western Cape, Cape Town , South Africa. Department of Biostatistics, School of Public Health, Yale University, New Haven, CT , USA. The Voices Project, Las Vegas, NV , USA. Network of Alcohol and Other Drugs Agencies, Sydney , Australia. Illawarra Health and Medical Research Institute, University of Wollongong, Wollongong , Australia. Discipline of Addiction Medicine, Faculty of Medicine and Health, University of Sydney, Sydney , Australia. Independent Researcher, Sydney , Australia. Addictions and Related Research Group, Sangath, Bardez , Goa, India. Addictions Department, King's College London, London SE NH, UK. School of Social Work, University of Pittsburgh, Pittsburgh, PA , USA. Translational Psychiatry Unit, Universität zu Lübeck, Lübeck, Germany. Institute for Mental Health Policy Research, Centre for Addiction and Mental Health, Toronto, ON MJ H, Canada. Department of Philosophy, King's College London, London SE NH, UK. Drug and Alcohol Research Network, School of Psychology, Queen's University Belfast, Belfast BT AJ, UK. Addiction Service, Hospital del Mar, Barcelona, Spain. Build on Belief, London SW HB, UK.

Abstract summary 

In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience ( = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

Authors & Co-authors:  Black Nicola N Chung Sophie S Tisdale Calvert C Fialho Luz Sousa LS Aramrattana Apinun A Assanangkornchai Sawitri S Blaszczynski Alex A Bowden-Jones Henrietta H van den Brink Wim W Brown Adrian A Brown Qiana L QL Cottler Linda B LB Elsasser Maury M Ferri Marica M Florence Maria M Gueorguieva Ralitza R Hampton Ryan R Hudson Suzie S Kelly Peter J PJ Lintzeris Nicholas N Murphy Lynette L Nadkarni Abhijit A Neale Joanne J Rosen Daniel D Rumpf Hans-Jürgen HJ Rush Brian B Segal Gabriel G Shorter Gillian W GW Torrens Marta M Wait Christopher C Young Katherine K Farrell Michael M

Study Outcome 

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Statistics
Citations :  Gakidou E., Afshin A., Abajobir A.A., Abate K.H., Abbafati C., Abbas K.M., Abd-Allah F., Abdulle A.M., Abera S.F., Aboyans V., et al. Global, regional, and national comparative risk assessment of 84 behavioural, environmental and occupational, and metabolic risks or clusters of risks, 1990–2016: A systematic analysis for the Global Burden of Disease Study 2016. Lancet. 2017;390:1345–1422. doi: 10.1016/S0140-6736(17)32366-8.
Authors :  32
Identifiers
Doi : 2154
SSN : 2077-0383
Study Population
Male,Female
Mesh Terms
Other Terms
Delphi;ICHOM;addiction;addictive disorders;consensus set;core outcome set;gambling disorder;gaming disorder;outcome measures;patient-centered;substance use
Study Design
Study Approach
Country of Study
Publication Country
Switzerland