Wakakosha "You are Worth it": reported impact of a community-based, peer-led HIV self-stigma intervention to improve self-worth and wellbeing among young people living with HIV in Zimbabwe.

Journal: Frontiers in public health

Volume: 11

Issue: 

Year of Publication: 2023

Affiliated Institutions:  Beyond Stigma, Dublin, Ireland. Centre for Positive Health Sciences, Royal College of Surgeons in Ireland, Dublin, Ireland. Centre for Sexual Health and HIV/AIDS Research (CeSHHAR), Harare, Zimbabwe. Renewal Trust, Harare, Zimbabwe. Zvandiri, Harare, Zimbabwe. Department of Epidemiology and Public Health, Royal College of Surgeons in Ireland, Dublin, Ireland. Community of the Work in Zimbabwe, Harare, Zimbabwe. Speak Up, Sing Out, Kildare, Ireland.

Abstract summary 

Self-stigma-negative self-judgements or core beliefs-can result in feelings of shame, worthlessness and self-blame, and impacts social interaction, mental health and health service utilization among people living with HIV (PLHIV). Few interventions target self-stigma among PLHIV and, to our knowledge, none until now for adolescents and young people LHIV (AYPLHIV) in sub-Saharan Africa. We present qualitative findings on the perceived impact of a self-stigma intervention (, "You are Worth it").The intervention adopted inquiry-based stress reduction (IBSR) at its core-a unique way of identifying and questioning deeply rooted self-stigma, combined with mindfulness, meditation and creativity. The intervention consisted of 16 × 3 hour group sessions. Supporting the intervention was a 156-page activity journal. We utilized a qualitative enquiry to explore the perceived impact of the intervention at various time points between November 2021 and November 2022, with 62 participants ( = 32 female). Discussions explored experiences of being involved in the intervention and any reports on changes in relation to self-stigma and shame. Additionally, we reviewed intervention documentation and creative elements. A thematic analysis guided generation of themes across all data sources.Both intervention participants and coaches described the transformative effect of the intervention, detailing their experiences before and after. Main themes that emerged were positive changes around: self-confidence, self-agency, sense of purpose/meaning, body positivity, improved communication and personal/family relationships and, forgiveness. The intervention also transferred a set of practical skills on self-inquiry, mindfulness, meditation and creativity that continued to be used in participants' daily lives.The intervention, using IBSR supported by music, creativity, writing and mindfulness techniques, showed potential for reducing self-stigma and improving self-worth among AYPLHIV. It also transferred practical skills to intervention participants and peer coaches, building their capacity to support others and deal with life challenges beyond HIV. The next phase is to continue supporting the young people to ensure fidelity as the peer coaches deliver the intervention to others. Study results indicate that culturally and practically, interventions to reduce self-stigma and/or improve self-worth operate at various levels and need to be designed and assessed at each level.

Authors & Co-authors:  Ferris France Nadine N Byrne Elaine E Nyamwanza Owen O Munatsi Vongai V Willis Nicola N Conroy Ronan R Vumbunu Sylivia S Chinembiri Moud M Maedziso Samantha S Katsande Munyaradzi A MA Dongo Takudzwa A TA Crehan Eimear E Mavhu Webster W

Study Outcome 

Source Link: Visit source

Statistics
Citations :  Mahajan AP, Sayles JN, Patel VA, Remien RH, Sawires SR, Ortiz DJ, et al. ., Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward AIDS, (2008). 22 S67–S79, doi: 10.1097/01.aids.0000327438.13291.62
Authors :  13
Identifiers
Doi : 1235150
SSN : 2296-2565
Study Population
Male,Female
Mesh Terms
Adolescent
Other Terms
HIV;inquiry-based stress reduction (IBSR);internalized stigma;intervention;self-stigma;self-worth;wellbeing;young people
Study Design
Study Approach
,Qualitative
Country of Study
Zimbabwe
Publication Country
Switzerland