Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries.

Journal: Dementia (London, England)

Volume: 21

Issue: 2

Year of Publication: 2022

Affiliated Institutions:  Centre for Chronic Illness and Ageing, Institute for Lifecourse Development, School of Human Sciences, University of Greenwich, London, UK. Dementia Care in Schizophrenia Research Foundation (DEMCARES in SCARF), Chennai, Tamil Nadu, India. Department of Psychology, Pontifical Catholic University of Rio de Janeiro, Brazil; Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK. Institut de Psychologie, Université de Paris, France. Department of Psychiatry, Universidade Federal de São Paulo, Brazil. Psychology Department, Universidade Federal do Rio Grande (FURG), Rio de Janeiro, Brazil. Department of Psychiatry, Universidade Federal de São Paulo, Brazil; Health Technology Assessment Unit, Hospital Alemão Oswaldo Cruz, Brazil. Occupational Therapy Department, Kilimanjaro Christian Medical University College, Tanzania. Population Health Sciences Institute, Newcastle University, UK. Population Health Sciences Institute, Newcastle University, UK; North Tyneside General Hospital, Northumbria Healthcare National Health Service Foundation Trust, UK. Clinical and Translational Medicine, Newcastle University, Tyne and Wear, UK; Gateshead Health NHS Foundation Trust, UK. Centre of Excellence in Mental Health, Atal Bihari Vajpayee Institute of Medical Sciences (formerly Post Graduate Institute of Medical Education and Research) and Dr Ram Manohar Lohia Hospital, India. Foundation for Research and Advocacy in Mental Health (FRAMe), Mysore, India. Foundation for Research and Advocacy in Mental Health (FRAMe), Mysore, India; Viveka Hospital, Mysore, India. Kerala University of Health Sciences, Thrissur, Kerala, India. Research Department of Clinical, Educational and Health Psychology, University College London (UCL), London, UK.

Abstract summary 

Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educational courses for caregivers of persons with dementia, providing much needed information whilst addressing important psychological concepts such as stigma.An international and multidisciplinary team developed Dementia Awareness for Caregivers (DAC) courses in four stages: (1) scoping review and module agreement, (2) development of an International template (DAC-International) containing a standardised process for adding information, (3) development of local DACs using a standardised format and (4) acceptability of courses in Brazil, India and Tanzania.The DAC-International was developed, comprising three modules: 'What is dementia?'; 'Positive engagement' and 'Caring for someone with dementia'. Three local versions were developed from this (DAC-Brazil, DAC-India and DAC-Tanzania), where additions of country-specific information included prevalent stereotypes and the addition of culturally relevant case studies. An initial field test was conducted in each country ( = 85), which indicated acceptability to participants.The methods used here resulted in culturally valid and acceptable educational courses for carers of people with dementia. Future work will consist of large-scale, formal evaluations and the development of additional local courses.

Authors & Co-authors:  Stoner Charlotte R CR Lakshminarayanan Monisha M Mograbi Daniel C DC Vaitheswaran Sridhar S Bertrand Elodie E Schimidt Brum Paula P Durgante Helen H Ferri Cleusa P CP Mkenda Sarah S Walker Richard R Dotchin Catherine C Paddick Stella-Maria SM Chandra Mina M Krishna Murali M Du Bharath B Shaji Kunnukattil S KS Fisher Emily E Spector Aimee A

Study Outcome 

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Statistics
Citations :  Aguirre E., Spector A., Orrell M. (2014). Guidelines for adapting cognitive stimulation therapy to other cultures. Clinical Interventions in Aging, 9, 1003-1007. 10.2147/cia.S61849
Authors :  18
Identifiers
Doi : 10.1177/14713012211055316
SSN : 1741-2684
Study Population
Male,Female
Mesh Terms
Caregivers
Other Terms
Education;caregiving;dementia;intervention;stigma
Study Design
Case Study
Study Approach
Country of Study
Tanzania
Publication Country
England