Perceived burden and family functioning among informal caregivers of individuals living with schizophrenia in Tanzania: a cross-sectional study.

Journal: BMC psychiatry

Volume: 22

Issue: 1

Year of Publication: 2022

Affiliated Institutions:  Duke Global Health Institute, Duke University, Durham, NC, USA. School of Medicine, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania. Mirembe National Mental Health Hospital, Dodoma, Tanzania. Duke Global Health Institute, Duke University, Durham, NC, USA. joy.baumgartner@unc.edu.

Abstract summary 

Globally, families play a critical role in providing care and support for persons living with schizophrenia. It is important to identify potentially modifiable factors that influence perceived caregiver burden in order to properly address the needs of caregivers. This is especially relevant in low-resource settings where psychiatric services are scarce and interventions could be most effective if targeted to both the individual living with schizophrenia and their caregiver. This study examines correlates of perceived burden among informal caregivers of individuals with schizophrenia in Tanzania, in particular, the association between burden and caregiver-reported family functioning.This study used baseline data from an individually randomized controlled trial with 65 pairs of individuals with schizophrenia and their informal caregivers in Dar es Salaam and Mbeya, Tanzania. Caregiver burden was measured using the Burden Assessment Scale. Univariable and multivariable regression analyses were performed to determine the relationship between caregiver burden and family functioning and to explore other correlates of burden.Sixty-three percent of caregivers reported experiencing high burden as a result of caring for a relative with schizophrenia. Multivariable regression analyses revealed that poor family functioning and the caregiver being employed were associated with high caregiver burden, while higher levels of hopefulness in the caregiver was associated with low caregiver burden.Caregivers who were employed, reported poor family functioning, and/or had low levels of hopefulness were more likely to perceive high caregiver burden. Future interventions aiming to reduce caregiver burden may benefit from improving family functioning and nurturing hope among caregivers of individuals living with schizophrenia. Policies and programs should be cognizant of the needs of caregivers that work in addition to providing care for a relative with schizophrenia in order to better support them.

Authors & Co-authors:  Clari Rosarito R Headley Jennifer J Egger Joseph J Swai Praxeda P Lawala Paul P Minja Anna A Kaaya Sylvia S Baumgartner Joy Noel JN

Study Outcome 

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Statistics
Citations :  Thornicroft G, Bebbington P. Deinstitutionalisation--from hospital closure to service development. Br J Psychiatry. 1989;155(6):739–753. doi: 10.1192/bjp.155.6.739.
Authors :  8
Identifiers
Doi : 10
SSN : 1471-244X
Study Population
Male,Female
Mesh Terms
Caregivers
Other Terms
Caregiver burden;Caregiving;Family functioning;Psychotic disorders;Schizophrenia
Study Design
Cross Sectional Study,Randomized Control Trial
Study Approach
Country of Study
Tanzania
Publication Country
England