Experiences and challenges of parents caring for children with attention-deficit hyperactivity disorder: A qualitative study in Dar es salaam, Tanzania.

Journal: PloS one

Volume: 17

Issue: 8

Year of Publication: 2022

Affiliated Institutions:  Lugalo General Military Hospital, Dar es Salaam, Tanzania. Clinical Nursing Department, School of Nursing, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.

Abstract summary 

Attention-deficit hyperactivity disorder (ADHD) is the most common neurobehavioral childhood disorder. Children with ADHD are difficult to handle due to the symptoms causing great impairments such as inattention, hyperactivity compared to other childhood mental disorders. Having a child with ADHD is a stressful situation as it impacts the whole family. However, little is known about the experiences and challenges of parents caring for children with ADHD in low and middle-income countries such as Tanzania. Thus, this study explored the experiences and challenges of parents caring for children with ADHD in Dar es Salaam, Tanzania.We conducted a qualitative descriptive study involving 16 parents of children with ADHD at Muhimbili National Hospital (MNH). We used the purposive sampling technique to obtain the participants. In-depth interviews, using a semi-structured interview guide, were used to collect data. Audio-recorded data were transcribed, translated, and analysed using qualitative content analysis.Parents experienced difficulties in handling the children whose level of functioning was impaired due to abnormal and disruptive behaviour such as not being able to follow parental instructions. Psychological problems were also experienced due to caring demands exacerbated by lack of support and stigma from the community. Moreover, there were disruptions in family functioning and social interactions among family members due to the children's behaviour. Lastly, too much time and family resources spent to fulfil the needs of these children culminated into disruption in economic activities that negatively affected everyday life.Parents struggle to meet and cope with care demands posed by children with ADHD. The disruptive nature of ADHD symptoms presents a unique caring challenge different from those experienced with other childhood mental illnesses. To address these challenges, a collaborative approach among key stakeholders such as the government, health care professionals, and non-governmental organizations, is needed.

Authors & Co-authors:  Ching'oma Charles Daud CD Mkoka Dickson Ally DA Ambikile Joel Seme JS Iseselo Masunga Kidula MK

Study Outcome 

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Statistics
Citations :  Sayal K, Prasad V, Daley D, Ford T, Coghill D. ADHD in children and young people: prevalence, care pathways, and service provision. Vol. 5, The Lancet Psychiatry. Elsevier Ltd; 2018. p. 175–86.
Authors :  4
Identifiers
Doi : e0267773
SSN : 1932-6203
Study Population
Male,Female
Mesh Terms
Attention Deficit Disorder with Hyperactivity
Other Terms
Study Design
Descriptive Study
Study Approach
,Qualitative
Country of Study
Tanzania
Publication Country
United States