Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions.
Journal: Epilepsy & behavior : E&B
Volume: 114
Issue: Pt B
Year of Publication: 2021
Affiliated Institutions:
Department of Paediatrics and Child Health, Makerere University College of Health Sciences, Mulago Hill Road, P.O.Box , Kampala, Uganda; Department of Paediatrics and Child Health, Mulago National Referral Hospital, Pediatric Neurology Unit, Kampala, Uganda.
School of Medicine, College of Health Sciences, Makerere University, P.O. Box , Kampala, Uganda.
Duke Division of Global Neurosurgery and Neurology, Department of Neurosurgery, Box Duke University Medical Center, Durham, NC , USA; Duke University School of Medicine, Department of Neurology, Durham, NC, USA; Duke University School of Medicine, Department of Psychiatry and Behavioral Sciences, DUMC, Box , Trent Drive, Durham, NC, USA. Electronic address: koltai@duke.edu.
School of Medicine, College of Health Sciences, Makerere University, P.O. Box , Kampala, Uganda; Department of Medicine, Mulago National Referral Hospital, Neurology Unit, Kampala, Uganda.
Department of Psychiatry, School of Medicine, Makerere University College of Health Sciences, P.O. Box , Kampala, Uganda.
Department of Mental Health and Community Psychology, Makerere University School of Psychology, P.O. Box , Kampala, Uganda.
Butabika National Referral Mental Hospital, P.O. Box , Kampala, Uganda.
Duke Division of Global Neurosurgery and Neurology, Department of Neurosurgery, Box Duke University Medical Center, Durham, NC , USA; Duke University School of Medicine, Department of Neurology, Durham, NC, USA; Duke Clinical Research Institute, Neuroscience Medicine, W Morgan St, Durham, NC , USA.
Duke Division of Global Neurosurgery and Neurology, Department of Neurosurgery, Box Duke University Medical Center, Durham, NC , USA; Duke Global Health Institute, Trent Dr, Durham, NC , USA; Duke University, School of Medicine, Durham, NC, USA.
UCB, Allée de la recherche , Brussels, Belgium.
Abstract summary
In this summary paper, we review the body of research contained in this special issue, The Intersection of Culture, Resources, and Disease: Epilepsy Care in Uganda, and corollary recommendations for a way forward. We review key findings and conclusions for the studies, which tell a story of culture and care-seeking through discussions and data gleaned from a rich research landscape traversing community village dwellings, shared communal areas, churches, and urban hospitals. The voices and perspectives of over 16,000 study participants inclusive of people living with epilepsy, their neighbors and healthcare workers, traditional healers, and faith leaders are reported. From this, we synthesize findings and prioritize a set of recommendations to advance epilepsy care in Uganda. Progress will require infrastructure strengthening, multilevel educational investments, and an ambitious, extensive program of community sensitization. These proposed priorities and actions outline a way forward through formidable but surmountable challenges but require harmonized efforts by government and other relevant stakeholders, scholars, clinicians, and community leaders. This article is part of the Special Issue "The Intersection of Culture, Resources, and Disease: Epilepsy Care in Uganda".
Authors & Co-authors:
Kakooza-Mwesige Angelina A
Kaddumukasa Mark M
Koltai Deborah C DC
Kaddumukasa Martin N MN
Nakasujja Noeline N
Kajumba Mayanja M
Nakku Juliet J
Kolls Brad J BJ
Fuller Anthony T AT
Teuwen Dirk E DE
Haglund Michael M MM
Study Outcome
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