Challenges and Fears of Adolescents and Young Adults Living with HIV Facing Transition to Adult HIV Care.

Journal: AIDS and behavior

Volume: 27

Issue: 4

Year of Publication: 2023

Affiliated Institutions:  Mbarara University of Science and Technology, Plot -, P. O.BOX , Mbarara, Uganda. sashaba@must.ac.ug. Emory University School of Medicine, Atlanta, GA, USA. Mbarara University of Science and Technology, Plot -, P. O.BOX , Mbarara, Uganda. Busitema University, Mbale, Uganda.

Abstract summary 

Adolescents and young adults living with perinatally-acquired HIV (AYLPHIV) have poor outcomes along each step of the HIV care continuum due to challenges in seeking care and advocating for themselves. The transition from paediatric to adult HIV care is a particularly high-risk period for AYLPHIV in rural Uganda. We conducted in-depth interviews with AYLPHIV (n = 30), caregivers (n = 10), and healthcare providers (n = 10) to understand challenges facing AYLPHIV during the transition from paediatric to adult HIV care. Themes were identified by thematic content analysis. Transition-related challenges and fears included difficulty navigating the adult HIV clinic; loss of informational support; long wait times at the adult HIV clinic; lack of privacy, and fear of HIV status disclosure and stigma; and loss of support from caregivers, and health care providers. Before transitioning to adult HIV care, AYLPHIV should be adequately prepared and given appropriate information to help them navigate adult HIV care.

Authors & Co-authors:  Ashaba Scholastic S Zanoni Brian C BC Baguma Charles C Tushemereirwe Patricia P Nuwagaba Gabriel G Kirabira Joseph J Nansera Denis D Maling Samuel S Tsai Alexander C AC

Study Outcome 

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Statistics
Citations :  UNAIDS. Advancing towards the three Zeros. Geneva, Switzerland: Joint United Nations Programme on HIV/AIDS.; 2020.
Authors :  9
Identifiers
Doi : 10.1007/s10461-022-03856-6
SSN : 1573-3254
Study Population
Male,Female
Mesh Terms
Humans
Other Terms
Adolescents;HIV care cascade;Uganda;challenges;sub-Saharan Africa;transition
Study Design
Cross Sectional Study
Study Approach
Country of Study
Uganda
Publication Country
United States