Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe.

Journal: PloS one

Volume: 16

Issue: 10

Year of Publication: 2021

Affiliated Institutions:  Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom. Department for Psychiatry II, Ulm University and BKH Günzburg, Günzburg, Germany. Department of Psychiatry A, Razi Hospital La Manouba, Manouba, Tunisia. Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Bengaluru, India. Department of Epidemiology, Centre for Public Health, National Institute of Mental Health and Neurosciences, Bengaluru, India. Department of Public Mental Health, National Institute of Mental Health, Klecany, Czechia. Unit of Psychiatry, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy. Section of Psychiatry, Department of Neuroscience, Biomedicine and Movement Sciences, University of Verona, Verona, Italy. Awakenings Foundation Budapest, Budapest, Hungary. Department of Mental Health, Alto Garda e Ledro Giudicarie, Arco, Italy. National Mental Health Programme Ministry of Public Health, Beirut, Lebanon. Institute of Psychology, University of Lausanne, Lausanne, Switzerland. Department of Psychology, University of Zurich, Zurich, Switzerland. Implemental Worldwide, London, United Kingdom. Institute of Population Health Sciences, University of Liverpool, Liverpool, United Kingdom. Transcultural Psychosocial Organization Nepal, Kathmandu, Nepal.

Abstract summary 

Stigma among healthcare providers is a barrier to the effective delivery of mental health services in primary care. Few studies have been conducted in primary care settings comparing the attitudes of healthcare providers and experiences of people with mental illness who are service users in those facilities. Such research is necessary across diverse global settings to characterize stigma and inform effective stigma reduction.Qualitative research was conducted on mental illness stigma in primary care settings in one low-income country (Nepal), two lower-middle income countries (India, Tunisia), one upper-middle-income country (Lebanon), and three high-income countries (Czech Republic, Hungary, Italy). Qualitative interviews were conducted with 248 participants: 64 primary care providers, 11 primary care facility managers, 111 people with mental illness, and 60 family members of people with mental illness. Data were analyzed using framework analysis.Primary care providers endorsed some willingness to help persons with mental illness but reported not having appropriate training and supervision to deliver mental healthcare. They expressed that people with mental illness are aggressive and unpredictable. Some reported that mental illness is incurable, and mental healthcare is burdensome and leads to burnout. They preferred mental healthcare to be delivered by specialists. Service users did not report high levels of discrimination from primary care providers; however, they had limited expectations of support from primary care providers. Service users reported internalized stigma and discrimination from family and community members. Providers and service users reported unreliable psychiatric medication supply and lack of facilities for confidential consultations. Limitations of the study include conducting qualitative interviews in clinical settings and reliance on clinician-researchers in some sites to conduct interviews, which potentially biases respondents to present attitudes and experiences about primary care services in a positive manner.Primary care providers' willingness to interact with people with mental illness and receive more training presents an opportunity to address stigmatizing beliefs and stereotypes. This study also raises important methodological questions about the most appropriate strategies to accurately understand attitudes and experiences of people with mental illness. Recommendations are provided for future qualitative research about stigma, such as qualitative interviewing by non-clinical personnel, involving non-clinical staff for recruitment of participants, conducting interviews in non-clinical settings, and partnering with people with mental illness to facilitate qualitative data collection and analysis.

Authors & Co-authors:  Koschorke Mirja M Oexle Nathalie N Ouali Uta U Cherian Anish V AV Deepika Vayankarappadam V Mendon Gurucharan Bhaskar GB Gurung Dristy D Kondratova Lucie L Muller Matyas M Lanfredi Mariangela M Lasalvia Antonio A Bodrogi Andrea A Nyulászi Anna A Tomasini Mario M El Chammay Rabih R Abi Hana Racha R Zgueb Yosra Y Nacef Fethi F Heim Eva E Aeschlimann Anaïs A Souraya Sally S Milenova Maria M van Ginneken Nadja N Thornicroft Graham G Kohrt Brandon A BA

Study Outcome 

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Statistics
Citations :  Sartorius N. Stigma and mental health. Lancet. 2007;370(9590):810–1. doi: 10.1016/S0140-6736(07)61245-8 .
Authors :  25
Identifiers
Doi : e0258729
SSN : 1932-6203
Study Population
Male,Female
Mesh Terms
Adult
Other Terms
Study Design
Cross Sectional Study
Study Approach
Qualitative
Country of Study
Tunisia
Publication Country
United States