Advocacy for patients with headache disorders.

Journal: eNeurologicalSci

Volume: 31

Issue: 

Year of Publication: 

Affiliated Institutions:  Neurology Department, LRSP, Razi Universitary Hospital, rue des orangers Manouba, Tunis, Tunisia. Patient Advocate, AZ, USA. European Federation of Neurological Associations & European Headache & Migraine Alliance, Dublin, Ireland. Ludwig Boltzmann Institute for Experimental und Clinical Traumatology, Donaueschingenstraße , A-, Vienna, Austria. Mayo Clinic Arizona, Chief Science Officer, Atria Academy of Science and Medicine, USA.

Abstract summary 

Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - lack of public awareness, stigma, lack of trained professionals with inadequate healthcare systems and policies - are remediable. Despite the progresses that were made in headache advocacy, these efforts have not yielded substantial improvements in research funding or access to specialty care and even standards of care. The situation is more complex in Low and Middle Income Countries (LMICs) where headache advocacy is urgently needed given the magnitude of the difficulties that patients with primary headache disorders face in accessing care. The growing emergence of coordinated, collaborative, patient-centered advocacy efforts with improved patient-clinician partnership is an opportunity to enhance progress in advocacy for a satisfying life and optimal and equitable care for people with primary headache disorders. LMICs can benefit greatly from coordinating these efforts on a global scale. The recent organization of a training program on headache diagnosis and management for healthcare professionals in Africa is a concrete example.

Authors & Co-authors:  Gouider Riadh R Lorenz Deborah Henscheid DH Craven Audrey A Grisold Wolfgang W Dodick David W DW

Study Outcome 

Source Link: Visit source

Statistics
Citations :  On Behalf of Lifting The Burden: The Global Campaign against Headache, Steiner T.J., Stovner L.J., Jensen R., Uluduz D., Katsarava Z. Migraine remains second among the world’s causes of disability, and first among young women: findings from GBD2019. J. Headache Pain [Internet] 2020 Dec doi: 10.1186/s10194-020-01208-0. [cited 2021 Dec 19];21(1). Available from:
Authors :  5
Identifiers
Doi : 100466
SSN : 2405-6502
Study Population
Male,Female
Mesh Terms
Other Terms
Advocacy;Headache;Low and middle income countries;Migraine
Study Design
Cross Sectional Study
Study Approach
Country of Study
Publication Country
Netherlands