An International Clinical Study of Ability and Disability in Autism Spectrum Disorder Using the WHO-ICF Framework.

Journal: Journal of autism and developmental disorders

Volume: 48

Issue: 6

Year of Publication: 2019

Affiliated Institutions:  Center of Neurodevelopmental Disorders at Karolinska Institutet (KIND), Division of Neuropsychiatry, Department of Women's and Children's Health, Karolinska Institutet, , Stockholm, Sweden. soheil.mahdi@ki.se. Experimental Developmental Psychopathology, Department of Child and Adolescent Psychiatry, Faculty of Medicine of the TU Dresden, Dresden, Germany. Mental Health Department, KAMC-R, MNGHA, Riyadh, Saudi Arabia. Theotokos Foundation, Athens, Greece. Child & Adolescent Neuropsychiatric Unit, Department of Biomedical Science, University of Cagliari & "A. Cao" Microcitemico Paediatric Hospital, Cagliari, Italy. Childhood and Adolescence Psychiatry Department, Oporto Hospital Centre, Porto, Portugal. Human Development Center, Riyadh, Saudi Arabia. Aalborg University Hospital Psychiatry, Aalborg, Denmark. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital of Marburg & Institute of Clinical Psychology, Philipps-University Marburg, Marburg, Germany. Aalborg University Hospital, Clinical Institute, Aalborg, Denmark. TEAMM Clinic, Department of Psychiatry, Federal University of São Paulo (UNIFESP), São Paulo, Brazil. Japan Centre for Applied Autism Research, Department of Clinical Psychology, Taisho University, Tokyo, Japan. ICF Research Branch, A Cooperation Partner Within the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI), Nottwil, Switzerland. CHILD, SIDR, School of Health and Welfare, Jönköping University, Jönköping, Sweden. Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa. Department of Pediatrics, University of Alberta, Edmonton, Canada. Center of Neurodevelopmental Disorders at Karolinska Institutet (KIND), Division of Neuropsychiatry, Department of Women's and Children's Health, Karolinska Institutet, , Stockholm, Sweden.

Abstract summary 

This is the fourth international preparatory study designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF-CY) Core Sets for Autism Spectrum Disorder (ASD). Examine functioning of individuals diagnosed with ASD as documented by the ICF-CY in a variety of clinical settings. A cross-sectional study was conducted, involving 11 units from 10 countries. Clinical investigators assessed functioning of 122 individuals with ASD using the ICF-CY checklist. In total, 139 ICF-CY categories were identified: 64 activities and participation, 40 body functions and 35 environmental factors. The study results reinforce the heterogeneity of ASD, as evidenced by the many functional and contextual domains impacting on ASD from a clinical perspective.

Authors & Co-authors:  Mahdi Soheil S Albertowski Katja K Almodayfer Omar O Arsenopoulou Vaia V Carucci Sara S Dias José Carlos JC Khalil Mohammad M Knüppel Ane A Langmann Anika A Lauritsen Marlene Briciet MB da Cunha Graccielle Rodrigues GR Uchiyama Tokio T Wolff Nicole N Selb Melissa M Granlund Mats M de Vries Petrus J PJ Zwaigenbaum Lonnie L Bölte Sven S

Study Outcome 

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Statistics
Citations :  American Psychiatric Association . Diagnostic and statistical manual of mental disorders (DSM-5) Washington, DC: Pilgrim Press: American Psychiatric Association (APA); 2013.
Authors :  18
Identifiers
Doi : 10.1007/s10803-018-3482-4
SSN : 1573-3432
Study Population
Male,Female
Mesh Terms
Adolescent
Other Terms
ASD;Assessment;Clinical study;DSM;Functioning;ICD;Neurodevelopmental disorder
Study Design
Cross Sectional Study
Study Approach
Country of Study
Publication Country
United States