International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group.

Journal: Arthritis care & research

Volume: 71

Issue: 12

Year of Publication: 2020

Affiliated Institutions:  University of Twente, Enschede, The Netherlands. International Consortium for Health Outcomes Measurement, London, UK. University Medical Center Utrecht, Utrecht, The Netherlands. Maastricht University Medical Centre, Maastricht, The Netherlands. Hong Kong Psoriatic Arthritis Association, Hong Kong, China. University Hospitals of Geneva and University of Geneva, Geneva, Switzerland. University of Alabama at Birmingham. Imperial College Healthcare NHS Trust, London, UK. Karolinska Institutet, Stockholm, Sweden. Sorbonne Université and Pitié Salpêtrière Hospital, AP-HP, Paris, France. Lockton Dunning Benefits, Dallas, Texas. Columbia University Medical Centre, New York, New York. Singapore General Hospital, Duke-NUS Medical School, Singapore. Sheba Medical Centre, Tel-Hashomer, Israel. Providence St. Joseph Health System, University of Washington, Seattle. University of Nebraska Medical Center Omaha, and the National Databank for Rheumatic Diseases, Wichita, Kansas. University of KwaZulu-Natal, Durban, South Africa. University of the West of England, Bristol, UK. Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil. Instituto Universitario Hospital Italiano de Buenos Aires, Buenos Aires, Argentina. University of Otago, Wellington, New Zealand. Maasstad Hospital, Rotterdam, The Netherlands. VU University Medical Centre, Amsterdam Public Health, Amsterdam, The Netherlands. Wilhelmina Children's Hospital, Utrecht, The Netherlands. University of Twente, Enschede, The Netherlands, and International Consortium for Health Outcomes Measurement, London, UK.

Abstract summary 

The implementation of value-based health care in inflammatory arthritis requires a standardized set of modifiable outcomes and risk-adjustment variables that is feasible to implement worldwide.The International Consortium for Health Outcomes Measurement (ICHOM) assembled a multidisciplinary working group that consisted of 24 experts from 6 continents, including 6 patient representatives, to develop a standard set of outcomes for inflammatory arthritis. The process followed a structured approach, using a modified Delphi process to reach consensus on the following decision areas: conditions covered by the set, outcome domains, outcome measures, and risk-adjustment variables. Consensus in areas 2 to 4 were supported by systematic literature reviews and consultation of experts.The ICHOM Inflammatory Arthritis Standard Set covers patients with rheumatoid arthritis (RA), axial spondyloarthritis, psoriatic arthritis, and juvenile idiopathic arthritis (JIA). We recommend that outcomes regarding pain, fatigue, activity limitations, overall physical and mental health impact, work/school/housework ability and productivity, disease activity, and serious adverse events be collected at least annually. Validated measures for patient-reported outcomes were endorsed and linked to common reporting metrics. Age, sex at birth, education level, smoking status, comorbidities, time since diagnosis, and rheumatoid factor and anti-citrullinated protein antibody lab testing for RA and JIA should be collected as risk-adjustment variables.We present the ICHOM inflammatory arthritis Standard Set of outcomes, which enables health care providers to implement the value-based health care framework and compare outcomes that are important to patients with inflammatory arthritis.

Authors & Co-authors:  Oude Voshaar Martijn A H MAH Das Gupta Zofia Z Bijlsma Johannes W J JWJ Boonen Annelies A Chau Jeffrey J Courvoisier Delphine S DS Curtis Jeffrey R JR Ellis Benjamin B Ernestam Sofia S Gossec Laure L Hale Christine C Hornjeff Jennifer J Leung Katy Y Y KYY Lidar Merav M Mease Phillip P Michaud Kaleb K Mody Girish M GM Ndosi Mwidimi M Opava Christina H CH Pinheiro Geraldo R C GRC Salt Matthew M Soriano Enrique R ER Taylor William J WJ Voshaar Maria J H MJH Weel Angelique E A M AEAM de Wit Maarten M Wulffraat Nico N van de Laar Mart A F J MAFJ Vonkeman Harald E HE

Study Outcome 

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Citations :  Crowson CS, Matteson EL, Myasoedova E, Michet CJ, Ernste FC, Warrington KJ, et al. The lifetime risk of adult‐onset rheumatoid arthritis and other inflammatory autoimmune rheumatic diseases. Arthritis Rheum 2011;63:633–9.
Authors :  29
Identifiers
Doi : 10.1002/acr.23799
SSN : 2151-4658
Study Population
Male,Female
Mesh Terms
Arthritis
Other Terms
Study Design
Cross Sectional Study
Study Approach
Systemic Review
Country of Study
Publication Country
United States