Out of the silos: identifying cross-cutting features of health-related stigma to advance measurement and intervention.

Journal: BMC medicine

Volume: 17

Issue: 1

Year of Publication: 2019

Affiliated Institutions:  NLR, Wibautstraat k, DN, Amsterdam, Netherlands. w.v.brakel@leprastichting.nl. Department of Physiological Nursing, Center for Tobacco Control Research and Education, University of California San Francisco, Koret Way, San Francisco, CA, -, USA. Department of Psychiatry, PGIMER, Chandigarh, India. Department of Psychiatry and Behavioral Sciences, George Washington University, Washington, DC, USA. RTI International, Washington, DC, USA. Epidemiology Department, UNC Gillings School of Global Public Health, Chapel Hill, NC, USA. Centre for Longitudinal & Life Course Studies, University of Antwerp, Antwerp, Belgium. College of Global Public Health, New York University, New York, NY, USA.

Abstract summary 

Many health conditions perceived to be contagious, dangerous or incurable, or resulting in clearly visible signs, share a common attribute - an association with stigma and discrimination. While the etiology of stigma may differ between conditions and, sometimes, cultural settings, the manifestations and psychosocial consequences of stigma and discrimination are remarkably similar. However, the vast majority of studies measuring stigma or addressing stigma through interventions employ a disease-specific approach.The current paper opposes this siloed approach and advocates a generic concept of 'health-related stigma' in both stigma measurement and stigma interventions. Employing a conceptual model adapted from Weiss, the current paper demonstrates the commonalities among several major stigmatized conditions by examining how several stigma measurement instruments, such as the Social Distance Scale, Explanatory Model Interview Catalogue, Internalized Stigma of Mental Illness, and Berger stigma scale, and stigma reduction interventions, such as information-based approaches, contact with affected persons, (peer) counselling, and skills building and empowerment, were used successfully across a variety of conditions to measure or address stigma. The results demonstrate that 'health-related stigma' is a viable concept with clearly identifiable characteristics that are similar across a variety of stigmatized health conditions in very diverse cultures.A more generic approach to the study of health-related stigma opens up important practical opportunities - cross-cutting measurement and intervention tools are resource saving and easier to use for personnel working with multiple conditions, allow for comparison between conditions, and recognize the intersectionality of many types of stigma. Further research is needed to build additional evidence demonstrating the advantages and effectiveness of cross-condition approaches to stigma measurement and interventions.

Authors & Co-authors:  van Brakel Wim H WH Cataldo Janine J Grover Sandeep S Kohrt Brandon A BA Nyblade Laura L Stockton Melissa M Wouters Edwin E Yang Lawrence H LH

Study Outcome 

Source Link: Visit source

Statistics
Citations :  Jones EE, Edward E, Farina A, Hasdorf A, Markus H, Miller DT, Scott R. Social stigma: the psychology of marked relationships. New York: W.H. Freeman; 1984.
Authors :  8
Identifiers
Doi : 13
SSN : 1741-7015
Study Population
Female
Mesh Terms
Female
Other Terms
HIV;Health-related stigma;cross-cutting approaches;disabilities;interventions;leprosy;measurement;mental health;neglected tropical diseases;tuberculosis
Study Design
Cross Sectional Study
Study Approach
Country of Study
Publication Country
England