International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS.
Journal: Journal of pain and symptom management
Volume: 63
Issue: 5
Year of Publication: 2022
Affiliated Institutions:
Paediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University of Padua, Padua, Italy. Electronic address: franca.benini@aopd.veneto.it.
Professor of Clinical Psychology, Department of Mental Health and Behavioral Studies, Faculty of Nursing, National and Kapodistrian University of Athens, Greece.
Associated Professor of Pediatrics, School of Medicine, Universidad de la República, Pereira Rossell Hospital Center, Pediatric Palliative Care Team Director, Montevideo, Uruguay.
Consultant in Paediatric Palliative Medicine at the Louis Dundas Centre, Great Ormond Street Hospital for Children, London, UK.
Pediatric Palliative Care and Pain Service, Institute for Maternal and Child Health Burlo Garofolo, Trieste, Italy.
International Children's Palliative Care Network (ICPCN), Uganda/UK.
Pediatric Palliative Care and Pain Services, Starship Children's Health, Auckland District Health Board, Auckland, New Zealand.
Professor in Pediatrics, Medical Director, Center of Pediatric Pain, Palliative and Integrative Medicine at UCSF Benioff Children's Hospitals in Oakland and San Francisco, California, USA.
Department of Pediatrics, Division of Critical Care, University of Alberta, Edmonton, Alberta, Canada; Stollery Children's Hospital PICU, Edmonton, Alberta, Canada.
Polistudium srl, Milan, Italy.
Department of Pediatrics, Portuguese Institute of Oncology, Lisbon Centre, Lisbon, Portugal.
Paediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University of Padua, Padua, Italy.
Department of Engineering and Architecture, University of Trieste, Trieste, Italy.
Sunflower Children's Hospice, Bloemfontein, South Africa.
Tata Memorial Hospital Mumbai, Maharashtra, India.
Columbia University Medical Centre, USA.
Paediatric Hospice, VIDAS Association, Milan, Italy.
Department of Psychosocial Oncology, Dana-Farber Cancer Institute and Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA.
Abstract summary
Since the publication of the IMPaCCT project in 2007, much effort has been made to develop new approaches to pediatric palliative care (PPC). Fifteen years later, it is time to redefine the standards in PPC.An international group of experts in PPC has revised the standards in PPC through the GO-PPaCS project (Global Overview - PPC Standards). The goal was to update the PPC standards considering the specificity of different settings, resources, and emerging challenges. The present document is intended to reach all people directly or indirectly involved in PPC.A literature review in MEDLINE was conducted to expand on the fundamental points and current standards on PPC and to cover an international setting. The literature search (updated on the 15th of April 2021) was carried out using different combinations of keywords and focusing on papers published in English over the past 5 years (2016-2020), but older articles were considered when relevant. The consensus on the fundamental points, standards of care and paper contents was reached by open discussion.Fundamental points were defined regarding the definition of PPC, eligibility criteria and the magnitude of the need for PPC, while standards were redefined for the following six areas: 1) clinical, developmental, psychological, social, ethical and spiritual needs; 2) end-of-life care; 3) care models and settings of care; 4) PPC in humanitarian emergencies; 5) care tools; and 6) education and training for healthcare providers.The present document, developed with the contribution of an international group of experts from different countries, experiences and models of care, provides fundamental points and standards for a wider implementation of PPC worldwide.
Authors & Co-authors:
Benini Franca F
Papadatou Danai D
Bernadá Mercedes M
Craig Finella F
De Zen Lucia L
Downing Julia J
Drake Ross R
Friedrichsdorf Stefan S
Garros Daniel D
Giacomelli Luca L
Lacerda Ana A
Lazzarin Pierina P
Marceglia Sara S
Marston Joan J
Muckaden Mary Ann MA
Papa Simonetta S
Parravicini Elvira E
Pellegatta Federico F
Wolfe Joanne J
Study Outcome
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