Perspectives About Transition Readiness Among Adolescents and Young People Living With Perinatally Acquired HIV in Rural, Southwestern Uganda: A Qualitative Study.

Journal: The Journal of the Association of Nurses in AIDS Care : JANAC

Volume: 33

Issue: 6

Year of Publication: 2023

Affiliated Institutions:  Scholastic Ashaba, MBChB, MMED, PhD is a Senior Lecturer, Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda . Brian C. Zanoni, MD, MPH, is an Assistant Professor, Departments of Medicine and Pediatric Infectious Diseases, Emory University, Atlanta, Georgia, USA and a Physician, Children's Healthcare of Atlanta, Atlanta, USA . Charles Baguma, B. SWASA, MPH, is a Project Manager, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Patricia Tushemereirwe, B. SWASA, is a Research Assistant, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Gabriel Nuwagaba, BA, is a Research Assistant, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Denis Nansera, MBChB, MMED, is a Consultant Pediatrician, Department of Pediatrics, Mbarara University of Science and Technology, Mbarara, Uganda . Samuel Maling, MBChB, MMED, MPH, is an Associate Professor, Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda . Alexander C. Tsai, MD, is a Psychiatrist, Department of Psychiatry, Center for Global Health and Mongan Institute, Massachusetts General Hospital, Boston, Massachusetts, USA and Associate Professor, Harvard Medical School, Boston, Massachusetts, USA .

Abstract summary 

Despite the availability of antiretroviral therapy, treatment outcomes are worse among adolescents and young adults living with perinatally acquired HIV (AYLPHIV). These disparities are magnified during the transition from pediatric to adult-based HIV care. We conducted in-depth interviews with AYLPHIV aged 15-24 years ( n = 30), their caregivers ( n = 10), and health care providers ( n = 10). All participants provided written assent and/or informed consent to enroll. Thematic content analysis was used to identify and analyze themes relevant to transition readiness. We grouped perspectives on transition readiness into 4 themes: preparation for transition, communication between stakeholders, social support, and timing of transition. AYLPHIV in sub-Saharan Africa who are facing a transition to adult HIV care should be equipped with relevant information about their illness, self-advocacy skills, and support from caregivers and health care providers to remain engaged in HIV care.

Authors & Co-authors:  Ashaba Scholastic S Zanoni Brian C BC Baguma Charles C Tushemereirwe Patricia P Nuwagaba Gabriel G Nansera Denis D Maling Samuel S Tsai Alexander C AC

Study Outcome 

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Statistics
Citations :  Abrams EJ, Mellins CA, Bucek A, Dolezal C, Raymond J, Wiznia A, Jurgrau A, Bamji M, Leu C-S, & Ng YKW (2018). Behavioral Health and Adult Milestones in Young Adults With Perinatal HIV Infection or Exposure. Pediatrics, 142(3), e20180938. doi:10.1542/peds.2018-0938
Authors :  8
Identifiers
Doi : 10.1097/JNC.0000000000000342
SSN : 1552-6917
Study Population
Male,Female
Mesh Terms
Young Adult
Other Terms
Study Design
Cross Sectional Study
Study Approach
Qualitative
Country of Study
Uganda
Publication Country
United States