Supporting caregivers of children with developmental disabilities: Findings from a brief caregiver well-being programme in South Africa.

Journal: Autism : the international journal of research and practice

Volume: 28

Issue: 1

Year of Publication: 2024

Affiliated Institutions:  University of Cape Town, South Africa. North-West University, South Africa. World Health Organization, Switzerland.

Abstract summary 

Young children with developmental disabilities and delays who live in low- and middle-income countries are at significant risk of not reaching their full potential. We know that daily interactions with their caregivers (parents or other people taking care of them) play an important role in promoting their development. However, having a child with developmental disabilities can have a negative impact on carers' mental health and well-being, which in turn can influence their capacity to care for their children. To date, very little attention has been given to the . The World Health Organization developed a Caregiver Skills Training programme which includes a brief, three-session module that focuses on improving caregivers' well-being and mental health. This well-being programme is based on acceptance and commitment therapy. Acceptance and commitment therapy shows increasing evidence of helping people respond to their stressors, thoughts, feelings and experiences a little differently and commit to small changes that are in line with their personal values. Acceptance and commitment therapy has shown promise in improving feelings of well-being in caregivers of children with developmental disabilities. We adapted the World Health Organization Caregiver Skills Training Caregiver well-being module to suit the South African context. The resultant 'Well Beans for Caregivers' was then delivered to caregivers from a rural, low-resource setting in South Africa. We found the intervention easy to implement, highly acceptable to caregivers and showed promising impacts on caregivers' well-being and mental health. This intervention has the potential to be implemented widely and sustainably to build caregivers' capacity to care for their children.

Authors & Co-authors:  Schlebusch Liezl L Chambers Nola N Rosenstein David D Erasmus Petro P de Vries Petrus J PJ

Study Outcome 

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Statistics
Citations : 
Authors :  6
Identifiers
Doi : 10.1177/13623613221133182
SSN : 1461-7005
Study Population
Male,Female
Mesh Terms
Child
Other Terms
Africa;Well-Beans for Caregivers;World Health Organization Caregiver Skills Training;acceptance and commitment therapy;caregiver mental health;caregiver well-being;dissemination and implementation research;global mental health;low- and middle-income countries
Study Design
Cross Sectional Study
Study Approach
Country of Study
South Africa
Publication Country
England