Evidencing the Impact of Web-Based Coproduction With Youth on Mental Health Research: Qualitative Findings From the MindKind Study.

Journal: JMIR public health and surveillance

Volume: 9

Issue: 

Year of Publication: 2023

Affiliated Institutions:  Department of Psychiatry, University of Oxford, Oxford, United Kingdom. Centre for Mental Health, School of Population and Global Health, University of Melbourne, Melbourne, Australia. Centre for Mental Health Law & Policy, Indian Law Society, Pune, India. Department of Psychiatry & Behavioral Sciences, University of Washington, Seattle, WA, United States. Department of Global Health, University of Washington, Seattle, WA, United States. Higher Health, Higher Education and Training: Health, Wellness, and Development Centre, Pretoria, South Africa. Mindkind Young People's Advisory Group, Centre for Mental Health Law & Policy, Indian Law Society, Pune, India. Mindkind Young People's Advisory Group, Department of Psychiatry, University of Oxford, Oxford, United Kingdom. Department of Psychiatry, University of Cambridge, Cambridge, United Kingdom. Sage Bionetworks, Seattle, WA, United States.

Abstract summary 

Public involvement in research is a growing phenomenon as well as a condition of research funding, and it is often referred to as coproduction. Coproduction involves stakeholder contributions at every stage of research, but different processes exist. However, the impact of coproduction on research is not well understood. Web-based young people's advisory groups (YPAGs) were established as part of the MindKind study at 3 sites (India, South Africa, and the United Kingdom) to coproduce the wider research study. Each group site, led by a professional youth advisor, conducted all youth coproduction activities collaboratively with other research staff.This study aimed to evaluate the impact of youth coproduction in the MindKind study.To measure the impact of web-based youth coproduction on all stakeholders, the following methods were used: analysis of project documents, capturing the views of stakeholders using the Most Significant Change technique, and impact frameworks to assess the impact of youth coproduction on specific stakeholder outcomes. Data were analyzed in collaboration with researchers, advisors, and YPAG members to explore the impact of youth coproduction on research.The impact was recorded on 5 levels. First, at the paradigmatic level, a novel method of conducting research allowed for a widely diverse group of YPAG representations, influencing study priorities, conceptualization, and design. Second, at the infrastructural level, the YPAG and youth advisors meaningfully contributed to the dissemination of materials; infrastructural constraints of undertaking coproduction were also identified. Third, at the organizational level, coproduction necessitated implementing new communication practices, such as a web-based shared platform. This meant that materials were easily accessible to the whole team and communication streams remained consistent. Fourth, at the group level, authentic relationships developed between the YPAG members, advisors, and the rest of the team, facilitated by regular web-based contact. Finally, at the individual level, participants reported enhanced insights into mental well-being and appreciation for the opportunity to engage in research.This study revealed several factors that shape the creation of web-based coproduction, with clear positive outcomes for advisors, YPAG members, researchers, and other project staff. However, several challenges of coproduced research were also encountered in multiple contexts and amid pressing timelines. For systematic reporting of the impact of youth coproduction, we propose that monitoring, evaluation, and learning systems be designed and implemented early.

Authors & Co-authors:  Fernandes Blossom B Neelakantan Lakshmi L Shah Himani H Sumant Sushmita S Collins Pamela Y PY Velloza Jennifer J Bampton Emily E Ranganathan Swetha S Sibisi Refiloe R Bashir Toiba T Bowes Joshua J David Esther Larisa EL Kaur Harsimar H Malik Umairah U Shannon Issy I Gurumayum Suvlaxmi S Burn Anne-Marie AM Sieberts Solveig K SK Fazel Mina M

Study Outcome 

Source Link: Visit source

Statistics
Citations :  Elwyn G, Nelson E, Hager A, Price A. Coproduction: when users define quality. BMJ Qual Saf. 2020 Sep;29(9):711–6. doi: 10.1136/bmjqs-2019-009830. bmjqs-2019-009830
Authors :  20
Identifiers
Doi : e42963
SSN : 2369-2960
Study Population
Male,Female
Mesh Terms
Humans
Other Terms
advisory groups;mental health;public involvement;web-based youth coproduction;young people
Study Design
Cross Sectional Study
Study Approach
Qualitative,Systemic Review
Country of Study
South Africa
Publication Country
Canada