Growing Up Can Be Hard to Do: Reimagining 1 Structurally Supportive Pediatric-to-Adult Transitions of Care from a Rights-Based Perspective.

Journal: Health and human rights

Volume: 25

Issue: 1

Year of Publication: 2023

Affiliated Institutions:  Resident physician in combined internal medicine and pediatrics at the University of Pennsylvania Health System and Children's Hospital of Philadelphia, United States. Consultant pediatric neurologist at the Komfo Anokye Teaching Hospital and a senior lecturer at the School of Medicine and Dentistry, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana. Clinical coordinator within inpatient medicine at Boston Children's Hospital, and a former nurse transition coordinator within the BRIDGES Adult Transition Program at Boston Children's Hospital, United States. Instructor at Harvard Medical School and an attending physician at Boston Children's Hospital and Brigham and Women's Hospital, Boston, United States.

Abstract summary 

Extended life expectancies and shifting dynamics in chronic disease have changed the landscape of public health interventions worldwide, with an increasing emphasis on chronic care. As a result, transition from pediatric to adult care for medically complex adolescents and young adults is a growing area of intervention. Transition medicine is a nascent field whose current emphasis is on middle- and high-income countries, and thus far its methods and discourse have reflected those origins. Through several case-based examples, this paper aims to highlight the possibilities of an analytic approach grounded in structural competency for transforming transition medicine through a human rights-based framework, with an emphasis on imagining a more global framework for transition medicine. Our cases highlight the disparities between patients navigating pediatric to adult-based care, illuminating social stigma, stratification between public and private insurances, engagement in risk-taking behaviors, family conflict, and challenges with transition readiness. To reimagine transition medicine so that it is based on human rights, we must prioritize structural solutions that embrace multisectoral integration and holistic mental health support rather than oppress and marginalize these critical systemic adaptations. We aim to reconfigure this scaffolding to center structures that integrate holistic well-being and imagine alternate realities to healing. Our work contributes to the literature bringing structural competency to new spaces of clinical practice, contextualizing new frontiers for the exploration of chronic diseases across diverse clinical contexts worldwide.

Authors & Co-authors:  Munyikwa Michelle M Hammond Charles K CK Langmaid Leanne L Ratner Leah L

Study Outcome 

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Statistics
Citations :  White P., Schmidt A., Schorr J. “Six Core Elements of Health Care Transition™ 3.0”. 2020.
Authors :  4
Identifiers
Doi : 
SSN : 2150-4113
Study Population
Male,Female
Mesh Terms
Adolescent
Other Terms
Study Design
Grounded Theory,Cross Sectional Study
Study Approach
Systemic Review
Country of Study
Publication Country
United States