Peer and Non-Peer Academic Scientists and Peer Support Specialist Community of Practice: Stakeholder Engagement to Advance the Science of Peer Support.

Journal: Proceedings. IEEE Global Humanitarian Technology Conference

Volume: 2021

Issue: 

Year of Publication: 

Affiliated Institutions:  Geisel School of Medicine, Dartmouth College, Hanover NH, USA. Simmons University, Boston MA, USA. Dartmouth College, Hanover NH, USA. Brandeis University, Waltham MA, USA. National Empowerment Center, Boston MA, USA. International Association of Pre-Menstrual Disorders, Nova Scotia, CA. National Empowerment Center, Poland. HealthPartners Institute, Minneapolis MN, USA. University of Wisconsin-Madison, Madison WI, USA. University of Rwanda, Kigail, Rwanda. Opromamer, Rwanda. University of Stavanger & Molde University College, Norway. University of Georgia, Athens GA, USA. University of Texas at El Paso, El Paso TX, USA. Mental Health Center of Greater Manchester, Manchester NH, USA. Boston College, Boston MA, USA. Temple University, Philadelphia PA, USA. Veterans Affairs, USA. Department of Mental Health, Boston MA, USA.

Abstract summary 

Community of Practice, a community-engagement method that encourages a group of people to interact regularly towards a common goal, may promote satisfying experiences in patient-outcomes research among marginalized populations. Peer support specialists are increasingly being involved in peer-informed mental health research due to their lived experiences of mental illness and are an asset in co-designing healthcare programs along with researchers. In 2015, ten scientists and ten mental health service users joined as a Community of Practice that trained to engage in patient-centered outcomes research. The group has so far has presented at 20 conferences, published three book chapters and 30 peer-reviewed publications, and developed two smartphone applications. Of note are the co-production of a smartphone application, a digital peer support certification program, an app decision support tool, and an instrument to assess the value of patient-research partnerships. Future research will assess the feasibility of incorporating more stakeholders to enhance research outcomes.

Authors & Co-authors:  Fortuna Karen K Mbao Mbita M Kadakia Arya A Myers Amanda A Fischer Daniel D MacDonald Sandi S Brunchet Sheila S Hintz Iga I Rossom Rebecca R Brooks Jessica J Kalisa Joseph J Haragirimana Claver C Storm Marianne M Mois George G Umucu Emre E Almeida Margaret M Rivera Jennifer J Zisman Ilani Yaara Y Venegas Maria M Walker Robert R

Study Outcome 

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Statistics
Citations :  Cyril S, et al., Exploring the role of community engagement in improving the health of disadvantaged populations: a systematic review. Glob Health Action, 2015. 8: p. 29842.
Authors :  20
Identifiers
Doi : 10.1109/ghtc53159.2021.9612411
SSN : 2377-6919
Study Population
Male,Female
Mesh Terms
Other Terms
PeerTECH;community of practice;marginalized populations;peer support specialists
Study Design
Study Approach
Country of Study
Publication Country
United States