Abstract summary 

Epigenomic and neurocognitive studies have provided new perspectives on post-traumatic stress disorder and its intergenerational transmission. This article outlines the lessons learned from community engagement (CE) in such research on Rwandan genocide survivors. A strong trauma-related response was observed within the research project-targeted community (genocide survivors) during explanation of the project. CE also revealed privacy concerns, as community members worried that any leakage of genetic/(epi)genomic data could affect not only themselves but also their close relatives. Adopting a culture of CE in the process of research implementation enables the prioritization of targeted community needs and interests. Furthermore, CE has stimulated the development of mental healthcare interventions, which married couples can apply to protect their offspring and thus truly break the cycle of inherited vulnerability.

Authors & Co-authors:  Musanabaganwa Clarisse C Jansen Stefan S Wani Agaz A Rugamba Alex A Mutabaruka Jean J Rutembesa Eugene E Uwineza Annette A Fatumo Segun S Hermans Erno J EJ Souopgui Jacob J Wildman Derek E DE Uddin Monica M Roozendaal Benno B Njemini Rose R Mutesa Leon L

Study Outcome 

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