Six Action Steps to Address Global Disparities in Parkinson Disease: A World Health Organization Priority.
Journal: JAMA neurology
Volume: 79
Issue: 9
Year of Publication: 2022
Affiliated Institutions:
Brain Health Unit, Department of Mental Health and Substance Use, World Health Organization, Geneva, Switzerland.
Department of Neurology, Norman Fixel Institute for Neurological Diseases, University of Florida, Gainesville.
Department of Gerontology, University of Southampton, Southampton, United Kingdom.
University of Rochester, Rochester, New York.
Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Radboud University Medical Centre, Nijmegen, the Netherlands.
Parkinson's Disease and Movement Disorder Society, Mumbai, India.
Chulalongkorn Centre of Excellence for Parkinson's Disease and Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society, Bangkok, Thailand.
Chemical Safety and Health Unit, Department of Environment, Climate Change and Health, World Health Organization, Geneva, Switzerland.
University Teaching Hospital, Lusaka, Zambia.
Edmond J. Safra Foundation, Geneva, Switzerland.
Hospital Universitario Burgos, Burgos, Spain.
Zucker School of Medicine at Hofstra Northwell, Uniondale, New York.
The Michael J. Fox Foundation, New York, New York.
University of Liverpool, Liverpool, United Kingdom.
Movement Disorders Unit, Department of Neurology, Westmead Hospital and University of Sydney, Sydney, Australia.
Institute of Neuroscience, Favaloro Foundation University Hospital, Buenos Aires, Argentina.
Person With Parkinsons, PD Avengers, Vancouver, British Columbia, Canada.
Neurological Health Charities Canada, Toronto, Ontario, Canada.
College of Health Sciences, Department of Physiotherapy, Qatar University, Doha, Qatar.
Department of Neurology, Charité-Universitätsmedizin Berlin, Berlin, Germany.
Malaysian Parkinson's Disease Association, Kuala Lumpur, Malaysia.
Division of Neurology, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
Parkinson Canada, Toronto, Ontario, Canada.
University of Oxford, Oxford, United Kingdom.
Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Weill Cornell Parkinson's Disease and Movement Disorders Institute, New York, New York.
College of Medicine, University of Lagos, Lagos, Nigeria.
National Institute of Mental Health and Neurosciences, Bengaluru, India.
Columbia University Medical Center, New York, New York.
Department of Neurology, Faculty of Medicine, Ain Shams University, Cairo, Egypt.
Department of Gynaecology and Gynaecological Oncology Neurology, Charité-Universitätsmedizin Berlin, Berlin, Germany.
Northumbria Healthcare NHS Foundation Trust, Newcastle-upon-Tyne, United Kingdom.
Abstract summary
The Global Burden of Disease study conducted between 1990 and 2016, based on a global study of 195 countries and territories, identified Parkinson disease (PD) as the fastest growing neurological disorder when measured using death and disability. Most people affected by PD live in low- and middle-income countries (LMICs) and experience large inequalities in access to neurological care and essential medicines. This Special Communication describes 6 actions steps that are urgently needed to address global disparities in PD.The adoption by the 73rd World Health Assembly (WHA) of resolution 73.10 to develop an intersectoral global action plan on epilepsy and other neurological disorders in consultation with member states was the stimulus to coordinate efforts and leverage momentum to advance the agenda of neurological conditions, such as PD. In April 2021, the Brain Health Unit at the World Health Organization convened a multidisciplinary, sex-balanced, international consultation workshop, which identified 6 workable avenues for action within the domains of disease burden; advocacy and awareness; prevention and risk reduction; diagnosis, treatment, and care; caregiver support; and research.The dramatic increase of PD cases in many world regions and the potential costs of PD-associated treatment will need to be addressed to prevent possible health service strain. Across the board, governments, multilateral agencies, donors, public health organizations, and health care professionals constitute potential stakeholders who are urged to make this a priority.
Authors & Co-authors:
Schiess Nicoline N
Cataldi Rodrigo R
Okun Michael S MS
Fothergill-Misbah Natasha N
Dorsey E Ray ER
Bloem Bastiaan R BR
Barretto Maria M
Bhidayasiri Roongroj R
Brown Richard R
Chishimba Lorraine L
Chowdhary Neerja N
Coslov Max M
Cubo Esther E
Di Rocco Alessandro A
Dolhun Rachel R
Dowrick Christopher C
Fung Victor S C VSC
Gershanik Oscar S OS
Gifford Larry L
Gordon Joyce J
Khalil Hanan H
Kühn Andrea A AA
Lew Sara S
Lim Shen-Yang SY
Marano Maria M MM
Micallef Jacquie J
Mokaya Jolynne J
Moukheiber Emile E
Nwabuobi Lynda L
Okubadejo Njideka N
Pal Pramod Kumar PK
Shah Hiral H
Shalash Ali A
Sherer Todd T
Siddiqui Bernadette B
Thompson Ted T
Ullrich Andreas A
Walker Richard R
Dua Tarun T
Study Outcome
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