Perceived and Enacted HIV-Related Stigma in Eastern and Southern Sierra Leone: A Psychometric Study of an HIV Stigma Scale.

Journal: medRxiv : the preprint server for health sciences

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Affiliated Institutions:  Department of Medicine, Case Western Reserve University School of Medicine, Cleveland, Ohio, USA. Eastern Technical University, Kenema, Sierra Leone. Department of Nursing, School of Community Health Sciences, Njala University, Bo Campus, Sierra Leone. Ministry of Health and Sanitation, Freetown, Sierra Leone. KnowHep Foundation, Freetown, Sierra Leone. University of Texas Southwestern Medical Center, Dallas, Texas, USA. Division of Infectious Diseases and Global Public Health, School of Medicine, University of California San Diego, La Jolla, California, USA. Faculty of Health, Southern Cross University, Lismore, Australia.

Abstract summary 

HIV stigma continues to hinder the care of people with HIV (PWH), especially in low-resource settings. We aimed to adapt and validate a concise HIV stigma scale for perceived HIV stigma in Sierra Leone.We enrolled participants in two HIV clinics in Eastern and Southern Sierra Leone in 2022. We assessed perceived stigma using a 12-item adaptation of Berger's HIV Stigma Scale and enacted stigma using select USAID indicators. We used ordinal logistic regression to identify predictors of perceived stigma and Pearson's correlation to examine associations between perceived and enacted stigma.624 PWH were enrolled. The final adapted 6-item HIV stigma scale demonstrated acceptable internal consistency (Cronbach's α = 0.72) and a four-factor solution accounting for 84.8% of variance: concern about public attitude (2 items), personalized stigma (2 items), negative self-image (1 item), and disclosure concerns (1 item). The prevalence of perceived HIV stigma was 68.6%, with disclosure concerns as the most prominent contributor. Enacted HIV stigma was reported by only 6.7% of participants, with partner/spousal abandonment and workplace stigma being the most common discriminatory experiences. Employment (β = 0.525, p <0.001), residence in Eastern Sierra Leone (β = 3.215, p < 0.001), and experiencing enacted stigma (β = 0.804, p < 0.001) were significantly associated with perceived stigma. Having a family member or friend with HIV (β = -0.499, p < 0.001), and HIV disclosure (β = -0.710, p < 0.001) were protective against perceived stigma. Enacted stigma strongly correlated with partner abandonment and family isolation (r = 0.223, p < 0.001).We found high levels of perceived HIV stigma, underscoring the need for targeted interventions to combat stigma and promote inclusivity for PWH in Sierra Leone.

Authors & Co-authors:  Yendewa Kpaka Sellu Yendewa Massaquoi Cummings Ghazzawi Barrie Dubé Lakoh James Salata Babawo

Study Outcome 

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Statistics
Citations :  WHO 2023. HIV and AIDS-Key facts. Available at: https://www.who.int/news-room/fact-sheets/detail/hiv-aids Accessed on June 20, 2023.
Authors :  13
Identifiers
Doi : 2023.07.07.23292152
SSN : 
Study Population
Male,Female
Mesh Terms
Other Terms
HIV;Sierra Leone;discrimination;mental health;stigma
Study Design
Study Approach
Country of Study
Sierra leone
Publication Country
United States