Systematic Literature Review of Health-Related Quality-of-Life Measures for Caregivers of Older Adult Trauma Patients.

Journal: The Journal of surgical research

Volume: 297

Issue: 

Year of Publication: 

Affiliated Institutions:  Division of Trauma and Critical Care and Acute Care Surgery, Department of Surgery, Duke University Medical Center, Durham, North Carolina. Electronic address: krista.haines@duke.edu. Division of Trauma and Critical Care and Acute Care Surgery, Department of Surgery, Duke University Medical Center, Durham, North Carolina. Duke Medical Center Library, Duke University Medical Center, Durham, North Carolina. Department of Population Health Sciences, Duke University School of Medicine, Durham, North Carolina. Division of Pulmonary & Critical Care Medicine and the Program to Support People and Enhance Recovery (ProSPER), Department of Medicine, Duke University, Durham, North Carolina. Division of Geriatrics, Department of Medicine, Duke University Medical Center, Durham, North Carolina.

Abstract summary 

As the older adult population increases, hospitals treat more older adults with injuries. After leaving, these patients suffer from decreased mobility and independence, relying on care from others. Family members often assume this responsibility, mostly informally and unpaid. Caregivers of other older adult populations have increased stress and decreased caregiver-related quality of life (CRQoL). Validated CRQoL measures are essential to capture their unique experiences. Our objective was to review existing CRQoL measures and their validity in caregivers of older adult trauma patients.A professional librarian searched published literature from the inception of databases through August 12, 2022 in MEDLINE (via PubMed), Embase (via Elsevier), and CINAHL Complete (via EBSCO). We identified 1063 unique studies of CRQoL in caregivers for adults with injury and performed a systematic review following COnsensus-based Standards for the selection of health Measurement Instruments guidelines for CRQoL measures.From the 66 studies included, we identified 54 health-related quality-of-life measures and 60 domains capturing caregiver-centered concerns. The majority (83%) of measures included six or fewer CRQoL content domains. Six measures were used in caregivers of older adults with single-system injuries. There were no validated CRQoL measures among caregivers of older adult trauma patients with multisystem injuries.While many measures exist to assess healthcare-related quality of life, few, if any, adequately assess concerns among caregivers of older adult trauma patients. We found that CRQoL domains, including mental health, emotional health, social functioning, and relationships, are most commonly assessed among caregivers. Future measures should focus on reliability and validity in this specific population to guide interventions.

Authors & Co-authors:  Haines Lumpkin Grisel Kaur Cantrell Freeman Tripoli Gallagher Agarwal Cox Schmader Reeve

Study Outcome 

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Statistics
Citations : 
Authors :  12
Identifiers
Doi : 10.1016/j.jss.2024.01.011
SSN : 1095-8673
Study Population
Male,Female
Mesh Terms
Other Terms
Caregivers;Geriatrics;HRQoL;Older adults;Trauma
Study Design
Study Approach
Country of Study
Publication Country
United States