How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.

Journal: Autism : the international journal of research and practice

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Affiliated Institutions:  Cardiff University, UK. The University of Sheffield, UK. Cardiff and Vale University Health Board, UK.

Abstract summary 

Autistic adults are more likely to experience mental and physical health difficulties, and yet can find it difficult to get the support that they need. A meta-ethnographic approach was used to review the existing research on autistic adults' experiences of accessing healthcare. Four databases were searched for qualitative and mixed-method studies which looked at the experiences of autistic adults who did not also have a learning disability when using healthcare services in the United Kingdom. Fifteen papers met the criteria to be included, and seven steps were used to analyse the information and develop new themes. Three main themes were identified: , and This review highlights how damaging misdiagnosis, inappropriate treatment, overwhelming environments and systems that are difficult to access can have on the well-being of autistic adults. Limited knowledge and understanding about autism knowledge among healthcare professionals along with autistic adult's own communication and sensory differences indicate that there is a need for improved training developed with autistic adults and adaptations.

Authors & Co-authors:  Radev Freeth Thompson

Study Outcome 

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Statistics
Citations : 
Authors :  3
Identifiers
Doi : 10.1177/13623613241235531
SSN : 1461-7005
Study Population
Male,Female
Mesh Terms
Other Terms
UK healthcare;adults;autism spectrum disorders;autistic;health services;healthcare;qualitative research
Study Design
Study Approach
Qualitative
Country of Study
Publication Country
England