Addressing disparities in European cancer outcomes: a qualitative study Protocol of the BEACON project.

Journal: Frontiers in psychology

Volume: 15

Issue: 

Year of Publication: 

Affiliated Institutions:  Applied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy. Genetic Counseling Unit, University Hospital for Tumors, Sestre Milosrdnice University Hospital Center, Zagreb, Croatia. European Alliance for Personalized Medicine, Maribor, Slovenia. SporeData OÜ, Tallinn, Estonia.

Abstract summary 

Health disparities represent a crucial factor in cancer survival rates, awareness, quality of life, and mental health of people receiving a cancer diagnosis and their families. Income, education, geographic location, and ethnicity are some of the most important underlying reasons for health disparities in cancer across Europe. Costs of healthcare, access to information, psycho-oncological support options, integration of cancer research and innovative care, and multidisciplinary cancer teams are the main target areas when it comes to addressing disparities in the cancer context. As part of the Beacon Project (BEACON), we developed a protocol for a qualitative study to explore and identify any relevant reasons for cancer inequalities and disparities in Europe.Our four stakeholders namely, cancer patients, healthcare providers, researchers, and policymakers will be recruited online, facilitated by collaborative efforts with cancer organizations from various European countries, including but not limited to Italy, Croatia, Estonia, and Slovenia. Qualitative online focus group discussions for each stakeholder will be conducted and transcribed. Subsequently, thematic analysis will be used to identify reasons and aspects that may contribute to the existing disparities in cancer outcomes at various levels of engagement and from different stakeholders' perspectives. Results from focus groups will inform a subsequent Delphi study and a SWOT analysis methodology.Although advances in medical research, cancer screening and treatment options are constantly progressing, disparities in access to and awareness of healthcare in cancer patients are even more noticeable. Thus, mapping the capacity and capability of cancer centres in the European Union, creating decision support tools that will assist the four stakeholders' information needs and improving the quality of European cancer centres will be the main objectives of the BEACON project. The current protocol will outline the methodological and practical procedures to conduct online focus group discussions with different stakeholders.

Authors & Co-authors:  Ferraris Coppini Monzani Grasso Kirac Horgan Pietrobon Galvão Pravettoni

Study Outcome 

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Statistics
Citations :  Antoni S., Ferlay J., Soerjomataram I., Znaor A., Jemal A., Bray F. (2017). Bladder Cancer incidence and mortality: a global overview and recent trends. Eur. Urol. 71, 96–108. doi: 10.1016/j.eururo.2016.06.010, PMID:
Authors :  9
Identifiers
Doi : 1252832
SSN : 1664-1078
Study Population
Male,Female
Mesh Terms
Other Terms
accessibility;cancer disparities;cancer inequality;cancer inequity;digital divide;health literacy;healthcare divide
Study Design
Study Approach
Qualitative
Country of Study
Publication Country
Switzerland