[DEVELOPMENT AND VALIDATION OF QUALITY OF LIFE QUESTIONNAIRE FOR PARENT BURDEN OF CHILDREN WITH FOOD ALLERGY].

Journal: Arerugi = [Allergy]

Volume: 73

Issue: 2

Year of Publication: 2024

Affiliated Institutions:  Department of Pediatrics, National Hospital Organization Fukuoka National Hospital. Okayama University School of Medicine. Department of Allergy, Allergy and Immunology Center, Aichi Children's Health and Medical Center. Department of Pediatrics, National Hospital Organization Kumamoto Medical Center. Department of Pediatrics, National Hospital Organization Shimoshizu Hospital. Department of Allergy and Respiratory Medicine, Fukuoka Children's Hospital. Allergy Center, National Hospital Organization Mie National Hospital. Department of Pediatrics, National Hospital Organization Fukuokahigashi Medical Center. Department of Pediatrics, National Hospital Organization Sagamihara Hospital. Allergy Center, National Center for Child Health and Development.

Abstract summary 

Quality of life (QOL) questionnaires for parents of children with food allergies have been developed in the United States and Europe. However, no original Japanese QOL questionnaire has been developed till date. We aimed to develop an original questionnaire to evaluate the QOL in parents of children with food allergies in Japan.We collected QOL-related questions from parents of children with food allergies aged 0-15 years, and created a primary questionnaire. Responses to the primary questionnaire were obtained from the parents again, and question items were reduced using factor analysis to create a secondary questionnaire comprising eight items. In addition to the secondary questionnaire, responses to the Food Allergy QOL Questionnaire-Parent Form (FAQLQ-PF) Japanese version, Parent reported Health-Related QOL in children and adolescents (KINDL) and Health-related QOL (SF-8) were obtained from parents to assess the validity of the secondary questionnaire.A total of 407 parents completed all questionnaires. The secondary questionnaire scores were positively correlated with those of FAQLQ-PF and weakly negatively correlated with the KINDL and SF-8 mental component summary scores. Parents of children with food allergies with ≥3 culprit foods or severe reactions to daily foods, a history of anaphylaxis, and those carrying adrenaline autoinjectors scored higher and had lower QOL.The developed original questionnaire is a valid QOL questionnaire for Parents of children with food allergies.

Authors & Co-authors:  Kawano Takase Yasunari Motomura Ikeda Matsui Ogata Suzuki Tezuka Nagao Masumoto Yanagida Ohya

Study Outcome 

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Statistics
Citations : 
Authors :  13
Identifiers
Doi : 10.15036/arerugi.73.180
SSN : 0021-4884
Study Population
Male,Female
Mesh Terms
Child
Other Terms
food allergy;japanese;parent;quality of life;questionnaire
Study Design
Study Approach
Country of Study
Publication Country
Japan