Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research.

Journal: Journal of empirical research on human research ethics : JERHRE

Volume: 8

Issue: 2

Year of Publication: 2013

Affiliated Institutions:  Department of Psychology and Neuroscience, Duke University, Durham, NC , USA. eve.puffer@duke.edu

Abstract summary 

Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.

Authors & Co-authors:  Puffer Pian Sikkema Ogwang-Odhiambo Broverman

Study Outcome 

Source Link: Visit source

Statistics
Citations :  Bell J, Standish M. Communities and health policy: A pathway for change. Health Affairs. 2005;24(2):339–342.
Authors :  5
Identifiers
Doi : 10.1525/jer.2013.8.2.119
SSN : 1556-2654
Study Population
Male,Female
Mesh Terms
Advisory Committees
Other Terms
Study Design
Study Approach
Country of Study
Kenya
Publication Country
United States