What Does "Good" Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research.

Journal: Frontiers in public health

Volume: 9

Issue: 

Year of Publication: 2022

Affiliated Institutions:  Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom. Public Contributor, Oxfordshire, United Kingdom. AIDS Clinical Trial Group Clinical Research Site Community Advisory Board, Clinical Trials Research Centre, University of Zimbabwe, Harare, Zimbabwe. School of Health Sciences, University of East Anglia, Norwich, United Kingdom. The Psoriasis and Psoriatic Arthritis Alliance, St Albans, United Kingdom. School of Nursing and Public Health, College of Health Sciences, University of KwaZulu-Natal, Durban, South Africa. National Institute for Health Research Centre for Engagement and Dissemination, London, United Kingdom. Kent and Medway Medical School, University of Kent and Canterbury Christ Church University, Canterbury, United Kingdom. African Mental Health Research Initiative (AMARI), Harare, Zimbabwe. Foundation for Open Development, Tororo, Uganda. Institute of Public Health & Social Sciences, Khyber Medical University, Peshawar, Pakistan. Wellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, United Kingdom. KEMRI Wellcome Trust Research Programme, Kilifi, Kenya. Medical Sciences Division, Department of Psychiatry, University of Oxford, Oxford, United Kingdom. Health and Nutrition Cluster, The Institute of Development Studies, University of Sussex, Brighton, United Kingdom. College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe. School of Medicine and Public Health, Ateneo de Manila University, Pasig, Philippines. Warwick Research in Nursing, Warwick Medical School, University of Warwick, Coventry, United Kingdom.

Abstract summary 

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does "good" CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what "good" CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what "good" CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

Authors & Co-authors:  Hickey Porter Tembo Rennard Tholanah Beresford Chandler Chimbari Coldham Dikomitis Dziro Ekiikina Khattak Montenegro Mumba Musesengwa Nelson Nhunzvi Ramirez Staniszewska

Study Outcome 

Source Link: Visit source

Statistics
Citations :  NIHR . Engage and Involve Communities. (2021). Available online at: https://www.nihr.ac.uk/researchers/apply-for-funding/how-to-apply-for-global-health-funding/community-engagement-and-involvement.htm (accessed August 4, 2021).
Authors :  20
Identifiers
Doi : 776940
SSN : 2296-2565
Study Population
Male,Female
Mesh Terms
Global Health
Other Terms
patient and public involvement;power dynamics;research relationships;research stakeholders;respecting community
Study Design
Study Approach
Country of Study
Kenya
Publication Country
Switzerland