Standardization of health outcomes assessment for depression and anxiety: recommendations from the ICHOM Depression and Anxiety Working Group.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Volume: 26
Issue: 12
Year of Publication: 2018
Affiliated Institutions:
Department of Psychosomatic Medicine, Center for Internal Medicine and Dermatology, Charité - Universitätsmedizin Berlin, Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Charitéplatz , , Berlin, Germany. alexander.obbarius@charite.de.
International Consortium for Health Outcomes Measurement (ICHOM), Arrow St., Ste. #, Cambridge, MA, , USA.
Harvard Medical School, Shattuck Street, Boston, MA, , USA.
Department of Experimental Psychology, University of Oxford, Tinbergen Building, South Parks Road, Oxford, OX UD, UK.
Institut Philippe-Pinel de Montréal, Henri-Bourassa Est, Montréal, QC, HC H, Canada.
Stichting Benchmark GGZ, Rembrandtlaan , BK, Bilthoven, The Netherlands.
Netherlands Institute for Advanced Study, Meijboomlaan , PR, Wassenaar, The Netherlands.
School of Public Health, Kyoto University Graduate School of Medicine, Yoshida Konoecho, Sakyo-ku, Kyoto, -, Japan.
Department of Clinical Neuroscience, Karolinska Institutet, Nobels väg , , Stockholm, Sweden.
Centre for Emotional Health, Department of Psychology, Macquarie University, Building CA, Level , Sydney, NSW, , Australia.
, Ottawa, ON, Canada.
Department of Psychiatry, University of Montréal, Pavillon Roger-Gaudry, C.P., succursale Centre-ville, Montréal, QC, HC J, Canada.
Makerere College of Health Sciences, Makerere University, P.O. Box , Kampala, Uganda.
Department of Psychosomatic Medicine, Center for Internal Medicine and Dermatology, Charité - Universitätsmedizin Berlin, Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Charitéplatz , , Berlin, Germany.
Department of Global Health and Social Medicine, Harvard Medical School, Huntington Avenue, Boston, , MA, USA.
Department of Psychiatry, University of Pittsburgh School of Medicine, Thomas Detre Hall, O'Hara Street, Pittsburgh, PA, , USA.
Department of Psychiatry, Columbia University, New York Presbyterian Hospital, West th Street, New York, NY, , USA.
Federal University of Rio Grande do Sul, Grupo CNPq - GPEMSA - USP/São Paulo, Av. Paulo Gama, - Bairro Farroupilha, Porto Alegre, Rio Grande do Sul, Brazil.
Clinical Hospital, Department of Psychiatry and Mental Health, University of Chile, Av. Libertador Bernardo O'Higgins , Santiago de Chile, Chile.
The RAND Corporation, Main Street, Santa Monica, CA, -, USA.
Anxiety UK, Zion Community Centre, Stretford Road, Hulme, Manchester, M ZY, UK.
Office of the U.S. Army Surgeon General, Arlington Blvd., Room SWA, Falls Church, VA, , USA.
Abstract summary
National initiatives, such as the UK Improving Access to Psychological Therapies program (IAPT), demonstrate the feasibility of conducting empirical mental health assessments on a large scale, and similar initiatives exist in other countries. However, there is a lack of international consensus on which outcome domains are most salient to monitor treatment progress and how they should be measured. The aim of this project was to propose (1) an essential set of outcome domains relevant across countries and cultures, (2) a set of easily accessible patient-reported instruments, and (3) a psychometric approach to make scores from different instruments comparable.Twenty-four experts, including ten health outcomes researchers, ten clinical experts from all continents, two patient advocates, and two ICHOM coordinators worked for seven months in a consensus building exercise to develop recommendations based on existing evidence using a structured consensus-driven modified Delphi technique.The group proposes to combine an assessment of potential outcome predictors at baseline (47 items: demographics, functional, clinical status, etc.), with repeated assessments of disease-specific symptoms during the treatment process (19 items: symptoms, side effects, etc.), and a comprehensive annual assessment of broader treatment outcomes (45 items: remission, absenteeism, etc.). Further, it is suggested reporting disease-specific symptoms for depression and anxiety on a standardized metric to increase comparability with other legacy instruments. All recommended instruments are provided online ( www.ichom.org ).An international standard of health outcomes assessment has the potential to improve clinical decision making, enhance health care for the benefit of patients, and facilitate scientific knowledge.
Authors & Co-authors:
Obbarius Alexander A
van Maasakkers Lisa L
Baer Lee L
Clark David M DM
Crocker Anne G AG
de Beurs Edwin E
Emmelkamp Paul M G PMG
Furukawa Toshi A TA
Hedman-Lagerlöf Erik E
Kangas Maria M
Langford Lucie L
Lesage Alain A
Mwesigire Doris M DM
Nolte Sandra S
Patel Vikram V
Pilkonis Paul A PA
Pincus Harold A HA
Reis Roberta A RA
Rojas Graciela G
Sherbourne Cathy C
Smithson Dave D
Stowell Caleb C
Woolaway-Bickel Kelly K
Rose Matthias M
Study Outcome
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