Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries.
Journal: Dementia (London, England)
Volume: 21
Issue: 1
Year of Publication: 2021
Affiliated Institutions:
Faculty of Health and Medicine, University of Newcastle, Callaghan, NSW, Australia; Alan J. Flisher Centre for Public Mental Health, Department of Psychiatry and Mental Health, University of Cape Town, Rondebosch, South Africa.
Care Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Universià della Svizzerra Italiana, Lugano; Faculty of Medicine, University of Geneva, Switzerland.
National institute of Mental Health and Neuro Sciences, India.
Caribbean Institute for Health Research, The University of the West Indies, Jamaica.
Care Policy and Evaluation Centre, London School of Economics and Political Science, UK.
Department of Psychiatry, Universidade Federal de São Paulo, Brazil.
Psychiatric Care Services, Ministry of Health, Mexico.
Alzheimer's Disease International, UK.
National Institute of Geriatrics, Mexico.
Alan J. Flisher Centre for Public Mental Health, Department of Psychiatry and Mental Health, University of Cape Town, South Africa; Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Africa Mental Health Research and Training Foundation, Kenya.
Department of Psychiatry; University of Nairobi; Africa Mental Health Research and Training Foundation, Kenya.
Alzheimer's and Related Disorders Society of India, New Delhi.
Alzheimer Indonesia and Department of Neurology, School of Medicine and Health Sciences, Atma Jaya Catholic University of Indonesia, Indonesia.
Dementia Alliance International, Australia.
Alzheimer Indonesia, Indonesia.
Alzheimer Indonesia; Department of Neurology, School of Medicine and Health Sciences, Atma Jaya Catholic University of Indonesia, Indonesia.
Alan J. Flisher Centre for Public Mental Health, University of Cape Town, South Africa.
Abstract summary
Evidence from middle-income countries indicates high and increasing prevalence of dementia and need for services. However, there has been little investment in care, treatment or support for people living with dementia and their carers. The Strengthening Responses to Dementia in Developing Countries (STRiDE) project aims to build both research capacity and evidence on dementia care and services in Brazil, Indonesia, India, Jamaica, Kenya, Mexico and South Africa. This article presents the Theory of Change (ToC) approach we used to co-design our research project and to develop a strategic direction for dementia care, treatment and support, with stakeholders. ToC makes explicit the process underlying how a programme will achieve its impact. We developed ToCs in each country and across the STRiDE project with researchers, practitioners, people living with dementia, carers and policymakers at different levels of government. This involved (1) an initial ToC workshop with all project partners (43 participants); (2) ToC workshops in each STRiDE country (22-49 participants in each); (3) comparison between country-specific and overall project ToCs; (4) review of ToCs in light of WHO dementia guidelines and action plan and (5) a final review. Our experiences suggest ToC is an effective way to generate a shared vision for dementia care, treatment and support among diverse stakeholders. However, the project contribution should be clearly delineated and use additional strategies to ensure appropriate participation from people living with dementia and their carers in the ToC process.
Authors & Co-authors:
Breuer
Comas-Herrera
Freeman
Albanese
Alladi
Amour
Evans-Lacko
Ferri
Govia
Iveth Astudillo García
Knapp
Lefevre
López-Ortega
Lund
Musyimi
Ndetei
Oliveira
Palmer
Pattabiraman
Sani
Taylor
Taylor
Theresia
Thomas
Turana
Weidner
Schneider
Study Outcome
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