Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries.
Journal: Dementia (London, England)
Volume: 21
Issue: 2
Year of Publication: 2022
Affiliated Institutions:
College of Health, Medicine and Wellbeing, University of Newcastle, Callaghan, NSW, Australia.
Care Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Department of Neurology, National Institute of Mental Health and Neurosciences, Bangalore, India.
STRiDE South Africa National Advisory Group, Cape Town, South Africa.
Epidemiology Research Unit, Caribbean Institute for Health Research, The University of the West Indies, Kingston, Jamaica.
Research Department, Instituto Nacional de Geriatria, Mexico City, Mexico.
Africa Mental Health Research and Training Foundation, Nairobi, Kenya.
Department of Psychiatry, Universidade Federal de São Paulo, Sao Paulo, Brazil.
Alzheimer's and Related Disorders Society of India, New Delhi, India.
Alzheimer Indonesia and Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia.
Alan J. Flisher Centre for Public Mental Health, University of Cape Town, Rondebosch, South Africa.
Dementia Alliance International and Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Dementia Alliance International and Dementia Awareness Advocacy Team, Capalaba, QLD, Australia.
Dementia Alliance International and Dementia Awareness Advocacy Team, Brisbane, QLD, Australia.
Abstract summary
Involving people living with dementia in service design and planning has become more common in high-income countries. It remains rare in low- and middle-income countries where two-thirds of the world's people with dementia live. In this commentary article, we explore the barriers to inclusion of people living with dementia in planning in low- and middle-income countries and make a case for the inclusion of people living with dementia in care and service planning. We suggest how this can be done at individual, community or national and state level using the following principles: 1) respecting the rights of people living with dementia to self-determination; 2) valuing people living with dementia's unique understanding of dementia; 3) creating a culture of active inclusion which creates a space for people living with dementia to participate and 4) ensuring appropriate accommodations are in place to maximise participation.
Authors & Co-authors:
Breuer
Freeman
Alladi
Breedt
Govia
López-Ortega
Musyimi
Oliveira
Pattabiraman
Sani
Schneider
Swaffer
Taylor
Taylor
Comas-Herrera
Study Outcome
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